Freya's special needs trike
Donation protected
We are the parents of Freya, Freya is a very special 8 year old child , she has a rare genetic condition Williams Syndrome, sometime referred to as sunshine children due to there happy nature.
this condition is caused by deletion of chromosome 7 the elastine gene.
This deletion causes mild to moderate learning difficulties cognitive imparement spatial awareness issues sensitive hearing heart defects and musculoskeletal problems to name a few, I can list all the issues caused but if you follow this link it will give you a more in depth look and raise awareness for this rare condition
Approx 1 in 20000 are affected worldwide www.williams-syndrome.org.uk.
Before Freya's diagnosis we were aware there were issues but thought she was a late developer
we purchased a pushbike as you do but found out that no matter how much encouragement she was unable to ride, so i(dad) fabricated a handle to attach to the back so she could enjoy the great outdoors,but this was a disaster and Freya never took to it, forward the clock four years and we came across a company Tom cat trikes, they came out and did an assessment and set a demo trike up to suit her, special gearing, pedals which hold the feet in position parent bar with brake and gearing which is suitable for her need, a saddle which holds her in position when in transit keeping her safe.
what happened next was amazing Freya peddled on her own with assistance on the parent handle to steer, something we thought we would never see and the smile and excitement Freya showed proved to us as a family we need to get a special needs trike so she can go cycling with her brother mum and dad instead of meeting them at the destination which we have been doing.
we as a family are trying to purchase the trike for Freya so she can enjoy a life that most children enjoy and that she joins in with as many activities as possible giving her a fantastic life.
if we can raise this money we would be so grateful becase Freya can get out and enjoy life, experience the great outdoors and smile
this condition is caused by deletion of chromosome 7 the elastine gene.
This deletion causes mild to moderate learning difficulties cognitive imparement spatial awareness issues sensitive hearing heart defects and musculoskeletal problems to name a few, I can list all the issues caused but if you follow this link it will give you a more in depth look and raise awareness for this rare condition
Approx 1 in 20000 are affected worldwide www.williams-syndrome.org.uk.
Before Freya's diagnosis we were aware there were issues but thought she was a late developer
we purchased a pushbike as you do but found out that no matter how much encouragement she was unable to ride, so i(dad) fabricated a handle to attach to the back so she could enjoy the great outdoors,but this was a disaster and Freya never took to it, forward the clock four years and we came across a company Tom cat trikes, they came out and did an assessment and set a demo trike up to suit her, special gearing, pedals which hold the feet in position parent bar with brake and gearing which is suitable for her need, a saddle which holds her in position when in transit keeping her safe.
what happened next was amazing Freya peddled on her own with assistance on the parent handle to steer, something we thought we would never see and the smile and excitement Freya showed proved to us as a family we need to get a special needs trike so she can go cycling with her brother mum and dad instead of meeting them at the destination which we have been doing.
we as a family are trying to purchase the trike for Freya so she can enjoy a life that most children enjoy and that she joins in with as many activities as possible giving her a fantastic life.
if we can raise this money we would be so grateful becase Freya can get out and enjoy life, experience the great outdoors and smile
Organizer
Ray Daunter
Organizer