Lillian-rose's Sara journey

On 23 Rd of Augest, mummy's water broke in Tara qld at my nannies house the doctors where very scared so they sent mummy along way to mater mothers hospital.
Mummy was put on bed rest and 2 days later her world come crashing down I was born at 24+4 weeks gestation weighing 620grams from a massive concealed abruption they had 10 minutes to get me out so I could live.
I was very little and fighting for life,
Daddy had to give up his job when mummy was 18 weeks because of multiple threatened labor and hospital admissions to watch my two brothers and sister full time,
Mummy has to stay at Ronald mc Donald house most of the time to be close for medical reasons till I'm stable
She travels home some times but it's fair distances to and from and FUEL adds up or for them to come down as daddy's not working till I'm all better.
Mid September they said I contracted meningitis I took a turn for the worst I have so far recovered
But I'm 31 weeks today and not coming home anytime soon I'm still on cpap since two weeks but requiring lots of oxygen.
Mummy really misses my sibilings and they miss me to they have not met me yet but I'm growing.
I have two holes in my heart and a pda so it's very hard for me to keep breathing on my own I have had 5 blood transfusions so far and there looking at another.
Daddy's hoping to get a knew job in December when I'm more better.
I had a brain bleed grade 1 at 2 weeks old that has healed I have over come 4 chest infections 9 lung collapses. Steroids to get off ventalation,
We are asking for help to relive some stress's at the moment as we are having to move out further to relive more stress off our backs and kids looked after and daddy's some help with my older siblings thank you
I would like to ask for some help for my family

UPDATE
Lillian-rose is know down to a CPAP of 6 next step is cpap peep of 5 and then high flow she's been in room air for 2 days know and doctors are hoping she is turned the corner.

Couple days ago she had a scare and required aloy of oxygen for some unexplained reason so they did a heart ultrasound that showed her pda has opened a bit more so they gave her ibuprofen and today he oxygen went back to room air

She's got poor weight gain again in 3 days only 20 grams

Brothers and sister come to stay with mummy for a bit for one on one time and daddy to have a breather very stressful events

Mummy has not had a cuddle in a week as always my brothers or sister needs to tinkle

So Matthew annie and Tyler met me the other day for the first time and I woke up hearing them talking to me.

I'm 32 weeks gestation on the dot today. Hoping to be home by Christmas if my lungs are ok by then...