Help for baby with Neurofibromatosis

Julianna was only 5 weeks old when she was hospitalized for breathing complications. It was then discovered that she has Neurofibromatosis type 1 (NF1) it is a condition characterized by changes in skin coloring (pigmentation) and the growth of tumors along nerves in the skin, brain, and other parts of the body. With having 4 other children to raise it has become a challenge to keep up with her medical bills. Recently her oncologist told us that she has a mass growing on the back of her airways. This prevents her from breathing properly, especially at night when she is trying to sleep. Julianna needs to see 6 different doctors throughout the year and needs to have an MRI done every 3-4 months to monitor the growth of her tumors, as well as many other tests and check ups. This has become very expensive and has caused a great stress on the family as we can not keep up with her medical needs. It would be such a Blessing and greatly appreciated for any donation amount to help us keep up with the things that she needs.



Thank you so much in advance from the Lige family!!