Chance to learn more about PKS syndrome.

My name is Robert Fusilier my daughter Kara  was born with a rare syndrome... Pallister Killians Syndrome(PKS).Im a single 55 year old father with a Full time job , Im still raising a 16 year old girl and my precious 3 year old, Kara with no complaints, I love my girls!!
With little medical knowledge here about PKS, we would learn so much more about the condition that has impacted our lives, and meet other families just like us.

To learn more about the condition and syndrom im always trying to learn what I can. I would like to attend a PKS conference to learn more on what to expect as my daughter gets older and what its going to take to properly raise her. I would like to make a Trip to a PKS conference in Chicago,Illinois. In order to make this trip possible I have to take both my daughters with me.I find it so hard to ask for anything,From anyone. 

 It would be a blessing to be able to attend this meeting and meet these familys that share similar struggles. The money i recive will be used for expenses to and from colorado to chicago and back; any money left will be used for Kara to improve her walking abilitys or other devices she will be needing in the near future.
Here is where the event will take place in chicago


     God Bless you and thank you for your time in reading this.