Help Lucie to get private treatment

Lucie is a child who suffers from a very rare condition called superior mesentric arterial syndrome. She is in pain 24 hours a day 7 days a week and is in need of specialist care. We are raising money for her parents to be able to seek medical help from the private sector, the NHS are saying there's not much more they can do for her except pain relief. We feel that if she can see a specialist in this condition, there may be some relief for this beautiful child. She is fast losing hope. Please help.