Logan's Sturge Weber Syndrome Fund

Meet Logan,
Logan was born May 28, 2010. When he was born we noticed redness on the left side of his face and thought nothing of it, but the doctor informed us that there was a chance of him having Sturge Weber Syndrome (SWS). This was the beginning of his lifelong journey.

Logan is now a 4 year old, hockey-loving young boy who lives with SWS. He is a caring and energetic boy who will be monitoring his disease for the rest of his life. SWS is a rare congenital, neurological, and progressive skin disorder. It is associated with Port Wine stain on the face, seizures, and strokes. At 4 weeks old Logan was diagnosed with glaucoma. He also has a tumor on his Left eye that causes retina detachment and blindness. Due to these medical needs, our family has had significant financial demands. Insurance coverage does not fully cover these surgeries, hospital stays, glasses, and other treatments.

The medical expenses have been constant and extreme. At any given time, our family has medical bills around $15,000 to be paid. Both of us, as his parents, hold full-time jobs but are still unable to keep up with the expenses of this disease. We are hoping to raise funds to allow us to continue with the procedures that Logan needs to fight the deterioration of his eye, as well as continued monitoring of his brain.

Logan's procedures are listed below:
10 proton radiation treatments to his eye to treat his tumor
6 eye surgeries to attempt to keep the retina from detaching
3 glaucoma surgeries
12 pulse dye laser treatments for the Port Wine stain

Please help us to reach our fundraising goal. Logan has taught us so much over the past four years. We have learned many things are not in our control and we have to stay strong and be hopeful for the best. Logan is our amazing resilient son.

Kristin, Pat
Logan and big sister Addison