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Shae Preston Fund

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Hi my name is Chelsea and my boyfriend is called Andrew. I would like to take the time to share our story about our amazing little boy Shae,

Our son Shae was born with Cystic Fibrosis which mainly affected his lung's as well as his other of his vital organs. Shae was born needing major bowel surgery which he received at just over 1 day old, he was born with meconium ileus with a blockage of his bowel which we discovered happens to normally around 10% of people with Cystic Fibrosis. Surgery left him requiring a colostomy bag which he received whilst he was in Alder Hey Hospital in Liverpool where he spent the first 5 months of his life, He underwent surgery in order to try and attempt to reclose his bowel on two occasions but unfortunately the surgery was unsuccessful and he remained with a colostomy bag.

Amongst having major operations Shae has had countless serious lung infections one which cause him to have a febrile convulsion which sent him into respiratory arrest which could of led to him passing away if the paramedics didn't manage to resuscitate him within 5 minutes. Thankfully they did! That left Shae in intensive care placed under a medically induced coma and left him on a life support machine. Shae got better after time and was able to finally come home.

Shae requires a large amount of medication every day to keep him alive due to the severity of his Cystic Fibrosis, myself and his dad give him two lots of chest physiotherapy each day where we vigorously massage his little chest for around 30 minutes a time, we do this in order to remove the thick sticky mucous from the walls of his lungs so he can breathe a bit easier, and so the mucous doesn't lay there causing infections which are life threatening to him.

At the age of 2 Shae went in for his final attempt at reclosing his colostomy bag, this time it was a success! and he could finally live without a colostomy bag. They fitted a feeding tube into his stomach which meant if he was to get blocked at any point we could put a really strong laxative down it, so he is able go the toilet without the use of a colostomy bag.

We are raising money for a Cystic Fibrosis Support Vest which are designed specifically to vibrate & remove the mucous off his chest to make his life that little bit easier. As a 2 year old boy he doesn't enjoy hand physiotherapy off me or his dad any more and it upsets him at times. The vest would make his airways clearer which means mucous wouldn't be left to cause as many infections and also be less traumatic for Shae.

We appreciate just how expensive these vests are and are going to do everything we can to try and raise as much as possible in order to get one for our son, I would like to take the time to thank you from the bottom of mine, Andrew and Shae's hearts for taking the time to read our story and possibly donating even the smallest amount. Hopefully we can raise the money to finally make his life that much better.

Love

Chelsea, Andrew & Shae
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Donations 

  • Kev Farrell
    • £53 
    • 9 yrs
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Organizer

Darren 'De-lap' Turley
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