Wheelz4Nate
Donation protected
This is Nate...... he is a very special one of a kind boy with a very RARE CONDITION and a long list of health issues. Because of these health issues Momma cannot work outside of the home and so they must live off the limited allotment he gets because of his disability.
We have set up this account because there is just no other way for him and his momma to get the one thing they really need!!!!
And what his family really needs is a vehicle!!
A good reliable vehicle that will accomodate him and his wheelchair. A vehicle that can not only get him and Momma back and forth to the store and to his local checkups but because he must be carfully monitored by his endocrineologist and other specialists twice a year they must go up to his specialist in Gainsville, Fl. ( a 3 hour drive from where he lives)
About a year and a half ago their car broke down and they brought it to the mechanic to be fixed. Well for some reason that we do not know the mechanic closed up shop and took the car with him and did not tell us!!
There is a police investigation underway.
Nate and his momma have been begging rides to the doctors and to the stores.
the money donated to this site will be used to get a good running vehicle.
Below is more detailed information about our special little man.
He is the only known person in the USA with Pro-opiomelanocortin Deficiency Disorder (2p23.3) and SIM1 ( 6q16.3) And it seems he is the only person in the world with this combination. Making him truly ONE OF A KIND.
These are BOTH rare genetic disorders and he deals with many life threatening challenges on a daily basis.
None of his Endocrine glands work properly which means He has:
1)Adrenal Insufficiency- A life threatening issue
2)Hypothyroidism- A life threatening issue
These are also classified as auto-immune disorders and therefore he must avoid all and any that are sick, even something as 'minor' to you and I such as a 24 hour tummy bug can and has but him in the E.R.
3)Hypothalamic Disorder which means he cannot control his body's temperature, yes, potentially life threatening too,
4)Hypopituitaryism this is the Master gland and because it is 'abnormal' the rest of his glands don't work at all or not very well.
5)Hyperphagia- A life threatening issue
a constant unsatisfiable appetite that is leading to life-threatening weight gain which can be very rapid even on a low-calorie diet. He MUST be supervised at all times in all settings where food is accessible.Imagine always being hungry and NEVER feeling full.
On top of that a almost NON existent metabolism (and with all that he is on a strict diet of only 600 cal. daily)
He also has Developmental Delays, Hypotonia - Low muscle tone, Sensory Processing disorder (SPD) , PDD/NOS this is on the spectrum and He has many Autistic Issues, Obstructive Sleep Apnea (OSA) and Extended Linear Growth, Trichotillomania
*Side note:
Supporters can also help by going to his Facebook page
www.facebook.com/POMCmomma
and PLEASE leave a message!!
We have set up this account because there is just no other way for him and his momma to get the one thing they really need!!!!
And what his family really needs is a vehicle!!
A good reliable vehicle that will accomodate him and his wheelchair. A vehicle that can not only get him and Momma back and forth to the store and to his local checkups but because he must be carfully monitored by his endocrineologist and other specialists twice a year they must go up to his specialist in Gainsville, Fl. ( a 3 hour drive from where he lives)
About a year and a half ago their car broke down and they brought it to the mechanic to be fixed. Well for some reason that we do not know the mechanic closed up shop and took the car with him and did not tell us!!
There is a police investigation underway.
Nate and his momma have been begging rides to the doctors and to the stores.
the money donated to this site will be used to get a good running vehicle.
Below is more detailed information about our special little man.
He is the only known person in the USA with Pro-opiomelanocortin Deficiency Disorder (2p23.3) and SIM1 ( 6q16.3) And it seems he is the only person in the world with this combination. Making him truly ONE OF A KIND.
These are BOTH rare genetic disorders and he deals with many life threatening challenges on a daily basis.
None of his Endocrine glands work properly which means He has:
1)Adrenal Insufficiency- A life threatening issue
2)Hypothyroidism- A life threatening issue
These are also classified as auto-immune disorders and therefore he must avoid all and any that are sick, even something as 'minor' to you and I such as a 24 hour tummy bug can and has but him in the E.R.
3)Hypothalamic Disorder which means he cannot control his body's temperature, yes, potentially life threatening too,
4)Hypopituitaryism this is the Master gland and because it is 'abnormal' the rest of his glands don't work at all or not very well.
5)Hyperphagia- A life threatening issue
a constant unsatisfiable appetite that is leading to life-threatening weight gain which can be very rapid even on a low-calorie diet. He MUST be supervised at all times in all settings where food is accessible.Imagine always being hungry and NEVER feeling full.
On top of that a almost NON existent metabolism (and with all that he is on a strict diet of only 600 cal. daily)
He also has Developmental Delays, Hypotonia - Low muscle tone, Sensory Processing disorder (SPD) , PDD/NOS this is on the spectrum and He has many Autistic Issues, Obstructive Sleep Apnea (OSA) and Extended Linear Growth, Trichotillomania
*Side note:
Supporters can also help by going to his Facebook page
www.facebook.com/POMCmomma
and PLEASE leave a message!!
Organizer
Karen Snizek
Organizer
New Smyrna Beach, FL