Carrie's Fund-£100k To Save A Life
Donation protected
I have a genetic condition that is causing my spine to collapse crushing my brainstem and leaving me with catastrophic damage. There are no treatment options available for me in the UK so my only hope is life-saving neurosurgery in Spain.
Time is running out as my condition is now in the advanced stage which means I MUST have this surgery this year (2018) or I may not survive. This leaves me with just a few months to raise the entire amount.
I have Ehlers Danlos Syndrome which has caused my entire digestive system to fail, my joints to dislocate easily, my spine to collapse and my brainstem to become crushed. Every system in my body is affected from my heart, immune system, nervous system and more. I am losing my sight for the second time, am fed directly into my heart and require 24hr care.
I have developed a complication called Cranio-Cervical Instability which means my spine in my neck is too weak to hold the weight of my head. This is causing dangerous dislocations in the neck which can result in an internal decapitation. The condition is causing me to lose my memory, struggle with basic cognitive tasks, it is causing sight loss, balance problems, and could go on to develop seizures, paralysis and even death.
There is no surgery options here in the UK for me so my only choice is a wonderful neurosurgeon in Spain who is treating people with EDS. Surgery will fuse my entire neck so I will loose all movement in my neck, but it will put a halt to my deteriorating symptoms. The surgery and associated costs come to £100k which is why I need your help.
Time is running out as my condition is now in the advanced stage which means I MUST have this surgery this year (2018) or I may not survive. This leaves me with just a few months to raise the entire amount.
I have Ehlers Danlos Syndrome which has caused my entire digestive system to fail, my joints to dislocate easily, my spine to collapse and my brainstem to become crushed. Every system in my body is affected from my heart, immune system, nervous system and more. I am losing my sight for the second time, am fed directly into my heart and require 24hr care.
I have developed a complication called Cranio-Cervical Instability which means my spine in my neck is too weak to hold the weight of my head. This is causing dangerous dislocations in the neck which can result in an internal decapitation. The condition is causing me to lose my memory, struggle with basic cognitive tasks, it is causing sight loss, balance problems, and could go on to develop seizures, paralysis and even death.
There is no surgery options here in the UK for me so my only choice is a wonderful neurosurgeon in Spain who is treating people with EDS. Surgery will fuse my entire neck so I will loose all movement in my neck, but it will put a halt to my deteriorating symptoms. The surgery and associated costs come to £100k which is why I need your help.
Organizer and beneficiary
Carrie Beckwith-Fellows
Organizer
Lisa Beckwith-Fellows
Beneficiary