#hopeforjayden
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Just over a year ago Jayden was diagnosed with a Grade 4 Brain Stem Tumour. Jayden’s parents were given the news that no parent should ever have to hear that Jayden had approximately a year to live. Jayden is just 5 years old.
During the last year Jayden has done exceptionally well but unfortunately over the last few weeks he has started to deteriorate. Jayden is under a Private Docctor which was recommended by Southampton Hospital. From this referral the family are now prescribed with a range of immune system supplements and Medical Cannabis Oil. This has gone through the correct avenues to ensure the safety and legalities of supplying the oil. The hope is the immune supplements will boost his innate immune system and for the oil to help fight the tumour. The oil is completely harmless if used in the prescribed manner. The NHS are not able to fund these treatments. They do not know what the outcomes will be from these treatments but as any family would, they will try anything for little Jayden.
Jayden had an MRI Scan on 11/09/2014 which unfortunately showed the tumor had increased significantly which is why we are now seeing the deterioration, of which has resulted in poor co-ordination, speech and being unable to walk without assistance. The reservoir and tube which was put in 6 months ago was to drain fluid from a Cyst, which was next to the tumor. This has got smaller, so that's good news. However, the unfortunate news is that another Cyst has grown along side the 1st Cyst. Also, some fluid has formed around the top of Jayden's Brain. All of these new set backs can have something done to either remove or drain, but we now have to wait to find out the plan to treat Jayden's current condition.
We are hoping to raise money to help assist with the purchase of these supplements and also to continue to ease the financial burden on the family.
To see Jayden’s full story and to follow how he is doing you can follow his page on facebook
https://www.facebook.com/pages/Hope-For-Jayden/211736845617084
Thank you for your support.
During the last year Jayden has done exceptionally well but unfortunately over the last few weeks he has started to deteriorate. Jayden is under a Private Docctor which was recommended by Southampton Hospital. From this referral the family are now prescribed with a range of immune system supplements and Medical Cannabis Oil. This has gone through the correct avenues to ensure the safety and legalities of supplying the oil. The hope is the immune supplements will boost his innate immune system and for the oil to help fight the tumour. The oil is completely harmless if used in the prescribed manner. The NHS are not able to fund these treatments. They do not know what the outcomes will be from these treatments but as any family would, they will try anything for little Jayden.
Jayden had an MRI Scan on 11/09/2014 which unfortunately showed the tumor had increased significantly which is why we are now seeing the deterioration, of which has resulted in poor co-ordination, speech and being unable to walk without assistance. The reservoir and tube which was put in 6 months ago was to drain fluid from a Cyst, which was next to the tumor. This has got smaller, so that's good news. However, the unfortunate news is that another Cyst has grown along side the 1st Cyst. Also, some fluid has formed around the top of Jayden's Brain. All of these new set backs can have something done to either remove or drain, but we now have to wait to find out the plan to treat Jayden's current condition.
We are hoping to raise money to help assist with the purchase of these supplements and also to continue to ease the financial burden on the family.
To see Jayden’s full story and to follow how he is doing you can follow his page on facebook
https://www.facebook.com/pages/Hope-For-Jayden/211736845617084
Thank you for your support.
Organizer
Tricia Hunt-Harrup
Organizer