Emma Gore’s Journey with Meier-Gorlin Syndrome

emmamgore.blogspot.com  Emma’s journey really began in May 2017 when I was 31 weeks pregnant, but she was measuring half the size of a regular fetus her age. Doctors told us she wouldn’t survive birth, but after 323 days in the NICU, we were able to bring her home. In June she will be 3 years old, but is still dependent on her trach, ventilator, and G-tube. She has a very rare type of Primordial dwarfism called Meier-Gorlin Syndrome. There are only 70 known cases in the world! Your generous donation will help pay for her on-going medical bills, as well as other things required which insurance does not cover.