Aisezim was born with SMA1. She needs 2.3 million$
Donation protected
Hello
Our daughter Aisezim was diagnosed with spinal muscular atrophy type 1, which atrophies all the muscles of the body, including the muscles of the respiratory tract, which subsequently leads to death from respiratory failure.
Aisezim is now 11 months old, she still can not hold her head, does not move her legs at all and breathes with shortness of breath, as she lacks the strength of the chest muscles.
In our country, in Kazakhstan, this disease is considered incurable and children with such a diagnosis simply die in front of their parents. The authorities of the country, because of the cost of treatment, do not want to notice that there is treatment and that such children can be cured.
This disease can be cured with just one injection, which is called Zolgensma, but which is the most expensive medicine in the world and is included in the Guinness Book of Records.
We are the parents of Aisezim, we ask the whole world to help us in the fight for our daughter's life
https://instagram.com/aisezim_sma_taraz?igshid=1m08d4m5m5god
Our daughter Aisezim was diagnosed with spinal muscular atrophy type 1, which atrophies all the muscles of the body, including the muscles of the respiratory tract, which subsequently leads to death from respiratory failure.
Aisezim is now 11 months old, she still can not hold her head, does not move her legs at all and breathes with shortness of breath, as she lacks the strength of the chest muscles.
In our country, in Kazakhstan, this disease is considered incurable and children with such a diagnosis simply die in front of their parents. The authorities of the country, because of the cost of treatment, do not want to notice that there is treatment and that such children can be cured.
This disease can be cured with just one injection, which is called Zolgensma, but which is the most expensive medicine in the world and is included in the Guinness Book of Records.
We are the parents of Aisezim, we ask the whole world to help us in the fight for our daughter's life
https://instagram.com/aisezim_sma_taraz?igshid=1m08d4m5m5godOrganizer
Sagynysh Zhaksylyk
Organizer
Yarmouth, MA