Della's ALS Journey

This is a difficult post for me, and it is not easy to write. As many of you know I was diagnosed with ALS in April of 2023. ALS is 100% fatal and life expectancy is 2-5 years.

I have spent most of the time since my diagnosis increasing awareness and raising funds for research but after a long chat with my family and friends, I have realized It's time to ask for help for my family.

ALS has not only upended our lives, but the financial costs are starting to make a big impact.

In the coming months, we will need

*to remodel our bathroom so I can access the shower safely,

*add a wheelchair lift from our garage into our house,

*purchase a wheelchair van so I can safely go to appointments

Along with a variety of other medical supplies.

However, what truly prompted this post is my progression.

I recently started to lose my ability to participate in daily tasks. I currently need help transferring, showing, getting dressed, and caring for my personal hygiene. We will need to hire outside help. The cost of around-the-clock care is staggering.

Many friends and family have implored us to ask for help and I think it’s time.

So, I am reluctantly asking for help.