Help Me Soar

I am a warrior fighting many battles: I have trigeminal neuralgia, fibromyalgia, a brain tumor, rheumatoid arthritis, Ménière's Disease, Crohn’s Disease, ankylosing spondylitis, hidradenitis suppurativa, Ehlers-Danlos syndrome, autism, and Complex PTSD. Though I struggle with these terrible afflictions, I have risen above them and attend  university as a full-time student where I study neuroscience and pursue my passion for astrophysics. I am now on permanent disability, and like so many others right now cannot afford the cost of staying alive.My conditions are extremely painful. My pain specialist recently prescribed me a new medication that has the potential to help my severe nerve pain. Unfortunately, this medication must be compounded at a specialty pharmacy for me. This is very expensive, and my insurance will not cover the costs. I cannot try and sustain this new medication without outside financial help. I am also struggling to pay my current co-pays on my other prescriptions. My vitamins and supplements each month are paid for out of my pocket and I need help making ends meet.The chronically ill are hard hit by the pandemic: I have been forced to order all my groceries online and have them delivered because of COVID-19. The delivery fees and tip fees each week add up to another extra expense for me. I am unable to leave my home because of the pandemic and the fact that I am on chemotherapy. I have an average of four medical appointments per week and am hospitalized multiple times each year. For each emergency room visit I must pay for my cab ride home, this is expensive considering I am in the emergency room at least once or twice a month.I am asking you to help me stay aloft. I cannot do this on my own and I need your help so I can continue my journey forward towards a better life with moments of peace and pain relief. I want to dedicate myself to my education, so that I can help others like myself. If you are a patron of the arts, you can support me by visiting/sharing my website: https://www.hannahcrazyhawk.comIf you would like to send me something more personal, I do have an Amazon Comfort Wishlist:https://www.amazon.com/hz/wishlist/ls/2PONNWZPQHYDH?ref_=wl_shareI have endured so much and been burned to the ground, please help me rise from these ashes and soar to a better future. * Urgent Update * (8/31/2021) I have difficult news to share. I met with my surgeon yesterday (8/30/2021). I have been suffering immensely from severe surgical complications from my first surgery on July 29th 2021 for my hidradenitis suppurativa in my groin. As some of you may know from my previous updates here, I am having multiple reconstructive surgeries of my groin, labia, and thighs to combat my stage three hidradenitis suppurativa. It is extremely painful, isolating, costly, triggering, and extensive. I now must have a complete reconstruction of my first largest incision - on my labia. I have been septic multiple times from continued, chronic abscesses in my incisions. Hidradenitis suppurativa is a chronic, autoimmune disease with no cure. The surgeries I am having are to mitigate the progression of the disease and hopefully extend my lifespan. Things are not going well. I am developing antibiotic resistance over the times between my surgeries. I am not ok. This is a terrifying place to be. I am in excruciating pain. At the start of my surgeries, my surgeon hoped they would slow the progression of the disease process, but they are not. My surgeon stated yesterday that it will not be a 3-4 surgery process, but an ongoing - lifetime battle of continued surgeries to remove the diseased tissue. Please send me your support and comfort. I need it. I am facing these surgeries alone. I have no one here to physically be with me. All I want is a hand to hold and arms to embrace me as I cry. This so, so painful and exhausting. Thank you for reading and being a friend to me. You make a difference in my world.