Kian’s Travel To America For Life Extending Treatment

Hi, my name is Laura and I am the best friend of Kelly. Kelly is the amazing mum of Kian and Ian is his fantastic dad.

I am helping to fundraise for Kians next treatment and his travel to and from the states to get this along with their accommodation as he is now requiring his next lot and it’s always super hard for his amazing parents to fundraise while they care for him.

Here is some information about our beautiful, funny & caring Kian and while we need some help for him.

Kian was born premature and in the first 10 days he needed resuscitation 3 times, he had severe jaundice, sepsis, bleed on his brain and they found 2 holes in his heart.

From birth he has been tested for genetic conditions but to this day he has diagnosis. They believe his one of a kind.

Kians condition causes multiple complex needs and he also has autism, ADHD & sensory processing disorder.

In his short life his experienced multiple cases of pneumonia, sepsis, cellulitis, meningitis, fluid in his lungs, severe loss of albumin and due to his bones not being fully formed, his had 3 femur breaks and needed his left knee and hip reconstructed.

The most serious part of Kians condition is that it causes leaky blood vessels. These vessels have been found in his eye (causing left eye blindness age 3) nose, gut, lymphatic system, bowel and liver. He has no immune system, loses his nutrients and proteins and bleeds easily. But the most serious of the bleeds are the ones that effect his brain. In 2017 when he was just 7 he had 3 strokes and his had quite a few mini stroeks since.

In 2017 Kians brain was dying and there was nothing more that could be done. It took months of searching but finally stem cell of America said they thought they could help. Kian has had 3 doses so far and we have been blessed with another 7 years with him.

This treatment isn't a cure, but it does help prolong his life. This means we have to take him whenever he starts showing symptoms of a relapse. This is also looked at in his MRI scans & he is now starting to be due another treatment.

We would all be so grateful of any donation that would help Kian no matter how small.