Medical Expenses - For Landry

Landry is literally 1 in a million.  Alternating Hemiplegia of childhood is a very rare and devastating neurological disorder, characterized by transient attacks of paralysis in one or more extremities. Episodes may also include dystonia (stiffening of the body), hypotonia (low muscle tone), and uncontrollable eye movements. Half of the children with AHC develop epilepsy.

AHC can present many different ways and varies from case to case and from day to day. Landry’s specific gene mutation is unlike anyone else’s, we have no idea what her future will look like.  Without knowing her needs we are unsure what the future holds as far as our abilities to work and the expenses surrounding her current and future care.  

You can help our family by donating through this site for Landry’s medical care. Her specialists are a plane flight away, her medication is not FDA approved or covered by insurance, and while gene therapy would be an answered prayer it would likely be an expensive one. There are also a lot of unknowns: medical bills not covered by insurance and equipment and care needs as she develops and grows. 

Thank you so much for helping us fight - 
FOR LANDRY.