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https://www.facebook.com/ourtroopersfightbattens
Hi all, we are back with an update. The boys have now been diagnosed with Battens Disease ,it is such a cruel illness that thakes a seemingly healthy child and takes their eye sight, speech, motor skills, they willget demetia, behaviour changes, will leave them bed ridden, tube fed, they have seizures which will become worse and medication won't help, it takes their lives early- usually in late teens, I'm opening the page back up for family and friends to donate to help send them on fun days out, and to make as many special memories as possible and for equiptment as and when needed. xx
update... As this is a gentic disorder the boys sisters we're tested too, ambers results came back fine, but Izzy (aged 7) has also came back that she too has this horrid disease. (This is a late update sorry)
Hi all, we are back with an update. The boys have now been diagnosed with Battens Disease ,it is such a cruel illness that thakes a seemingly healthy child and takes their eye sight, speech, motor skills, they willget demetia, behaviour changes, will leave them bed ridden, tube fed, they have seizures which will become worse and medication won't help, it takes their lives early- usually in late teens, I'm opening the page back up for family and friends to donate to help send them on fun days out, and to make as many special memories as possible and for equiptment as and when needed. xx
update... As this is a gentic disorder the boys sisters we're tested too, ambers results came back fine, but Izzy (aged 7) has also came back that she too has this horrid disease. (This is a late update sorry)
Organizer
Tina Penn
Organizer