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Help Get Autumn to Philadelphia!

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Autumn is my beautiful 13 year old daughter. She has a rare disorder known as 22q DiGeorge Syndrome. It can cause of slew of health problems that can affect almost any part of the body, including the immune system. Having a immune deficiency means that Autumn is sick a lot. She can't really enjoy being a child when she's always sick.  She was born with a heart condition and flown to philadelphia hospital as a baby where she underwent  heart surgery and was diagnosed with 22Q.11 also known as velocardifacial syndrome . This syndrome can affect many organs and mental health issues . At this point we are still fighting with the schools to be able to better educate them on her syndrome  . The doctors and educators in this area are not familiar with the syndrome and what it involves . Autumn also has high anxiety and needs a full evaluation by a team of doctors who are familiar with her syndrome  so that she can get everything she needs to grow and have a chance to be a kid .
Autumn has the chance to go to Philadelphia for testing from head to toe for help with her 22q. This trip will be of so much benefit for her.  The funding for this will be used to help get a vehicle and this is not just a one day trip . We also do not have extra funds monthly to get her there  back and fourth. These appointments are not just a week of testing she may have to return frequently let alone the appointment she sees localy can be very costly. We are hoping with your help we can get Autumn diagnosed properly to improve her physical and mental health . As far as we know her medical insurance is covered but the other expenses are not . 
Any and every little donation will help us make that possible for her. Let's do what we can and get Autumn to Philadelphia!!!

Organizer

Stacy Mihulec Murphy
Organizer
Pottsville, PA

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