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Help bring our little girl home

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Hi everyone my name is Dawn and I am going to find this very difficult to write this story but I am going to try my best.I guess we never really imagined the events that were about to unfold in our lives that could go so horribly wrong. We have always been a private, strong, loving and caring family and never at any time could we think about giving up but honestly in the last 4 months I do not know how much more as a family we can take.
We have always said that things in life happen for a reason, well maybe but why o why has life got to be so cruel.
We as a family have never felt so alone and scared. Who would have thought our lives would change so dramatically like it has in the last 4 years.
Cutting our story as short as we can 4 years ago we agreed to babysit a little baby boy aged 6 weeks. From this day this little baby never went back to his biological parents.
So being left alone without any help or support  for 2 years wondering if this little boy was going to be allowed to stay with us was a terrifying experience, the fact that any day he could be taken from us we had grown to love him as our own. We all decided to take this to court to try to adopt him.
As the long court process went ahead things took a dramatic turn, whilst in court we were told that he had an elder sibling Alice and she was in the care system, would I be willing to take on Alice so that the siblings could be kept together. WOW mind blowing decisions to be made and fast.
Obviously we had no hesitation this little girl of 3 years old had already been through enough in her short life. So in August 2015 our family life had changed forever.
I was a mother of 2 very young children on a Special Guardianship Order.
Alice came to live with us with some health and behavoiral issues but not as bad as the one's we have now.
For the last 18 months of Alice being in our care her health has deteriorated, we have organised and attended countless appointments trying to get answers but no one listened. We could see that she was getting worse and Alice became that poorly she became wheelchair bound.  Alice was diagnosed with global delay and other issues.
By now our little boy was about to turn 4 and Alice had just turned 5 years old.
On April 7th we decided to take a much deserved family holiday not knowing our lives were about to be torn apart. As we awoke on the 11th of April Alice was un-responsive and very poorly so poorly we called 999 and we were rushed to the hospital as she was critical and she was placed on life support.
Sitting at the bedside of my little girl being told to prepare for the worse as she may not make it through the night....this is  the hardest thing as a mum to hear I was terrified and as she slowly made a recovery I was then told that Alice was in End Stage Kidney Renal Failure. It felt like someone had just ripped my heart out.
I was by her bedside day and night for weeks not knowing what the future will hold it was life changing and devastating news, we had tried so hard to help Alice and now it had come to this.

We are not going to give up on Alice as she is our life and we all love her so much, spending weeks in hospital, operations, test after tests our little Alice is strong, well as strong as can be  she is always smiling.
Unfortunately Alice is stuck 100+ miles away from home in hospital as it is the closest place for her to have life saving dialysis 3 times a week.
Alice has recently undergone another operation to have a catheter inserted so that she can come home to have daily dialysis but unfortunately it is not that easy. Our home is not adequate to meet Alice's clinical and care needs and requires adaptation to accommodate her life saving treatment before she can come back home.
We have had no financial or emotional support from the authorities or Social Services for the accommodation so we have had no choice but to leave Alice in hospital as it would be too risky to bring her home.  We have done all we can to fight for the rights for Alice to get her the accommodation she needs to survive and have some sort of quality of life.
When we thought that things could not get any worse as a family Social Services have decided to place Alice into hopefully "Temporary" foster care away from her family. They would rather do this than finance her home to meet her needs so that she can return to her family, it is disgracefull the way they have treated her.
After months of meetings and fighting and pleading it has left us with no other option but see if can raise some of the money required through 'Go Fund Me' as it is the only avenue that we have left.
We have never asked for any additional financial help for these children since being in our care but when we do ask out of despair  the authorities just shut the door in our faces.
We have planning permission and some funds ready for the building works to start we just need help so that we can get the adaptational  and clinical works done for Alice.  Without any help Alice will remain in the "Care System" yet again,  I do not think we could take this.
We do not know if this appeal is going to work but times are heartbreaking and critical so we feel that we have no other option to try to get Alice home were she belongs.
We also feel there are good people out there in the world just like us that are willing to help Alice and save our family.
It feels really odd telling our story and our personal life to the social media, family, friends, neighbours and strangers but when in a desperate situation you will do anything.
As a family we are gratefull to you for taking your time to read our story at length and hope one day these children especially Alice can have some sort of qualitiy of life they deserve, they are children at the end of the day and they need and deserve things that other children do and we want to be able to do this.
Please help us to help Alice home to her little brother who misses her so much.
Please continue to share our page and check back for any news on how Alice is progressing also any possible set backs we as a family may encounter in the future.

If sadly we do not reach our target amount or enough money to achieve enough of the adaptations needed to bring Alice home then we will send  all our donations reveived to a fantastic charity that have helped us along this difficult time in our lives and that charity will be kidney Wales.  

Organizer

Dawn Jay
Organizer

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