Help Amy Fight RSD/CRPS

My wife Amy has a terrible disease called RSD / CRPS ( Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome ). She developed this terrible neurological pain disease in 2009 while undergoing a surgical procedure. The disease has spread throughout her body. RSD / CRPS is one of the most painful diseases there is. Even more painful than child birth, cancer or even amputation.

Amy used to love doing things with her two daughters and husband. She was involved in every aspect of their lives. RSD / CRPS has taken all that away. She no longer can do their hair or nails or attend their games or events. She can't go out to eat, go shopping or go to family events. The ability to do the things she used to do with her family or even spending quality family time has been stolen from her. The only time she leaves the house now is to go to doctor appointments. She can only walk very short distances and even that is very painful and difficult. She is forced to use a wheelchair the rest of the time. She can only wear certain types of clothes because fabric hurts her skin. Even air and bath water can hurt her.

She is unable to take care of herself and needs help to do the things that most of us take for granted. There are days when she can't even hold a fork or her phone. There are days when she has difficulty even talking. Amy used to enjoy writing cards to people but now has trouble writing or at times even holding the pen. On her worse days she is relegated to staying in bed with the lights out because light and sound cause her pain and bring on severe migraines. This disease has dramatically and tragically affected Amy and our whole family.

RSD / CRPS Quick Facts:

Extremely painful and never goes away.
Changes skin texture and causes abnormal sweating and itching.
Causes painful, stiff and inflamed joints.
Causes muscle atrophy, tremors and decreased muscle coordination.
In some people, autoimmune antibodies are present in the blood.
Can lead to disability.
Changes in nail and hair growth.
Affects short term memory.
Causes gastrointestinal problems.
Can spread throughout the body.
Causes dental problems.
Causes sleep problems.
Can cause vision problems
and more...

To learn more about and to try to understand what this terrible disease feels like please watch the video below.


Amy has tried the various conventional and unconventional treatments such as nerve blocks and all the recommended medications such as lyrica, neurotin, gabapentin, pain meds, etc.  She has tried physical therapy, ketamine cream and other topical creams, tens units, aqua therapy, acupuncture, biofeedback, pain patches, Quell machine, occupational therapy, myofascial release, massage, pain psychologist, home care and more. She has been to many, many doctors and specialists throughout the years. All have produced either no or very minimal results. Some have even produced damaging results through side effects.

She has also done Calmare Scrambler Therapy multiple times throughout the years. Calmare therapy has given Amy some positive results but not enough or long lasting enough to be life changing.

So that brings us to what this fund raiser is for. Amy will be getting treatment at a neurological relief clinic in Arkansas starting in November and she also has to undergo dental surgery at VCU in Richmond, VA to remove failed dental implants and damaged teeth before she goes to Arkansas.

Our goal is for Amy to be able to regain her life back and in so doing enhance the lives of her family. Amy wants to be able to be the best mom she can be and some day the best grandma she can be. She wants to be able to pay it forward and help others who are in chronic pain or difficult situations.

Below is a more detailed break down of what the raised funds will be used for:

$4,000 for oral surgery in October 2019 at VCU in Richmond, VA to remove failed dental implants and damaged teeth.

$22,000 or more to go to The Neurological Relief Clinic in Fayettville, AR starting in November 2018. This is an extensive 10 week or more program where you receive treatment 3 to 6 times a day treating the central nervous system and taking a whole body approach. They use a multitude of treatments tailored to each individual patient ranging from working with the vagus nerve, EMF therapy, Neuromuscular Re-education and other treatments. The goal is to have the patient be able to regain their life back. They have had amazing results. Click here to see some reviews from past patients. 

$6,000 - $8,000 for housing and living expenses while attending the clinic.

If you are unable to donate to the fund raiser, gift cards to Walmart or Target are also appreciated for help with groceries and other items that may be needed while we are living in Arkansas while Amy undergoes treatment. If you would like to send a gift card then you can contact me through this GoFundMe fund raiser or you may email at [email redacted] and I will give you an address to mail them to.

All donations or gift cards are greatly appreciated. We thank you for any help that you can give to help Amy and our family.

Also please share this fundraiser with others. To do so you may share the website below:

www.gofundme.com/helpamyfightrsd

Thanks,
Chris