Hope for Maddie (Medical expenses/care)

Hi my name is Erin Hays and I am looking for a diagnosis and cure for my 9yr old Maddie. Her health issues started back in November 2013 when she broke out with the first rash on her face that has now become crippling for her and the doctors are lost! It covers her whole face to the point her eyes swell shut and it travels down her neck. It has even started to go down her arms, stomach, and legs! We have been to specialists after specialist and to the ER/hospital more times then a child should ever go in a lifetime. She has been "poked" a lot for tons of labs and nothing gives a answer or indication to what the problem is. Besides the horrible itchy/burning rash she has swollen lymph nodes in her neck, under arms, groin and in her abdomen. She is also suffering from nose bleeds, abdominal pain, blood in vomit and stool, apnea spells, and weight gain. I have traveled hours away to see different doctors and though they seemed very concerned no one can give us a answer or give Maddie any kind of relief. My husband and I have gone though our savings account paying for medical bills, specialist fees and countless medications that were not covered by insurance, and not to mention travel expenses to and from the children's hospital that is almost a hour away from where we live.  I have 4 young and precious children and its become very difficult to get by with just my husbands income. I loved my job as a photographer but I have had to turn clients away and limit myself due to my daughter health condition and having to make sure she gets the care she needs. My family will be more then apprecaitive for any finacial help donated but more importantly please help us find her the doctors she needs so we can get Maddie better!