Fundraiser for baby Ethan
Donation protected
Our baby son, Ethan Gabriel Weaver was born October 30th 2014. He was healthy and beautiful, weighing in at 7 lbs 14 oz! We noticed a day or so after he was born that he was doing some odd movements fairly often, although they were subtle. By his 5th day of life we noticed him repeading them and realized he was having seizures. (We found out even serious seizures can look very very subtle in a newborn because their nervous system is still so un-developed. So they don't start out looking like what you typically think of as a seizure, or what we thoght of, like a whole body rapidly convulsing. Ethan's seizures started as just stiffenings and repeated movements and his eye darting horizontally. As he's developed they have gotten more intense and severe. )
He spent a week in Phoenix Children's Hospital and was diagnosed with seizures. He would have them as often as every 20 minutes, lasting 30 seconds to 3 minutes each. They also determines with the EEG monitor that his brain has very disorganized brain wave activity, even when he is not having a seizure. They ruled out many of the possible causes, all test results kept coming back normal and healthy, but the seizures persisted. They got him on 2 prescrition medications and had also given him a stronger "rescue" medication to stop his seizures. He then went 3 days witout a seizure and he was discharged from the hospital to go home.
Then next day after being home his seizures started back up. We called his neurologist and got advice over the phone to up the dose of one of his medications, we gave it a few days to take effect, but his seizures continued. We called again and were given advise over the phone to up the dose of the other medication and give it a chance to take effect, but if it didn't we were to come back to the hospital.
His seizures continued and so my husband and I are currently staying at Phoenix Children's Hospital with Ethan. Ethan has two older brothers Logan, 6 years old, and Jaden, 2 1/2 years old. They love their baby brother sooo much. They are currently having to stay with their grand parents 3 1/2 hours away from us, their parents and baby brother. My husband has to miss work when he is here at the hospital. I am also taking a longer maternity leave than expected, away from my job as a self employed hair stylist and salon owner. It is a new salon and I am barely able to break even with it at this point. Our hospital bills, travelling expenses, etc are quite high and we are struggling to make ends meet, as well as not knowing how we will have money for our oldest son's birthday coming up or with christams coming up. While we have to stress some about finances right now, we have been extremely fortunate to have so much support and help from family and friends with caring for our other two boys, caring for our dogs, helping us watch Ethan when he was at home and had to be watched 24/7 even through the night! And of course all of the sweet well-wishes and continued prayers from everyone! We are so blessed to have such amazing family and friends!!
We are still awaiting results from more genetic testing and at this point do not know what the future holds for us, other than that Ethan has some form of severe drug-resistant Epilepsy. He is such a sweet baby boy and we thank God for our little blessing. In spite of this all he brings so much joy to our lives!!
Even the smallest donation will help us. We appreciate it SO much!! And hope to be in the position to pay it forward or back in the future should we be in the position to be able to help those who need assistance from us!!
Thank you SO much!!!
Sincerely,
Baby Ethan's Parents
Cierra and Michael Weaver
He spent a week in Phoenix Children's Hospital and was diagnosed with seizures. He would have them as often as every 20 minutes, lasting 30 seconds to 3 minutes each. They also determines with the EEG monitor that his brain has very disorganized brain wave activity, even when he is not having a seizure. They ruled out many of the possible causes, all test results kept coming back normal and healthy, but the seizures persisted. They got him on 2 prescrition medications and had also given him a stronger "rescue" medication to stop his seizures. He then went 3 days witout a seizure and he was discharged from the hospital to go home.
Then next day after being home his seizures started back up. We called his neurologist and got advice over the phone to up the dose of one of his medications, we gave it a few days to take effect, but his seizures continued. We called again and were given advise over the phone to up the dose of the other medication and give it a chance to take effect, but if it didn't we were to come back to the hospital.
His seizures continued and so my husband and I are currently staying at Phoenix Children's Hospital with Ethan. Ethan has two older brothers Logan, 6 years old, and Jaden, 2 1/2 years old. They love their baby brother sooo much. They are currently having to stay with their grand parents 3 1/2 hours away from us, their parents and baby brother. My husband has to miss work when he is here at the hospital. I am also taking a longer maternity leave than expected, away from my job as a self employed hair stylist and salon owner. It is a new salon and I am barely able to break even with it at this point. Our hospital bills, travelling expenses, etc are quite high and we are struggling to make ends meet, as well as not knowing how we will have money for our oldest son's birthday coming up or with christams coming up. While we have to stress some about finances right now, we have been extremely fortunate to have so much support and help from family and friends with caring for our other two boys, caring for our dogs, helping us watch Ethan when he was at home and had to be watched 24/7 even through the night! And of course all of the sweet well-wishes and continued prayers from everyone! We are so blessed to have such amazing family and friends!!
We are still awaiting results from more genetic testing and at this point do not know what the future holds for us, other than that Ethan has some form of severe drug-resistant Epilepsy. He is such a sweet baby boy and we thank God for our little blessing. In spite of this all he brings so much joy to our lives!!
Even the smallest donation will help us. We appreciate it SO much!! And hope to be in the position to pay it forward or back in the future should we be in the position to be able to help those who need assistance from us!!
Thank you SO much!!!
Sincerely,
Baby Ethan's Parents
Cierra and Michael Weaver
Organizer
Cierra Weaver
Organizer
Show Low, AZ