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Brain Surgery for Kimberlie LaFavor
Donation protected
I don't know where to start.... first please allow me to introduce myself - I'm Kimberlie LaFavor, 44 years old and the mother of three boys, 19, 13 and 10. So here's my story..... March 2013 I had severe dizziness, vertigo, nausea, numbness, loss of taste smell and a bad headache - blood work was ordered routine physical exam and I was sent on my way and informed I was just "stressed out", but I knew that wasn't the answer and that something was wrong. I was persistent and requested more be done as my symptoms became worse - cognitive issues, lack of coordination, insomnia, blurred/double vision, light sensitivity, fatigue, back and neck pain, numbness, ear pain, sinus pressure and yet more dizziness and nauseau. I couldn't stand up or I would fall, my head felt like it might split in two as the room was spinning. My symptoms were extreme at times, but I was building a tolerance and learned to push through, I didn't know what it was, but I was sure it wasn't a migraine phenomena or just a virus or ear infection or something simple like that.... as I was led to believe it was. I was prescribed medicine after medicine, none of them working. Still I pressed on, I learned to advocate and requested more tests be done. Finally after two years and a brain MRI, I had a diagnosis and mounting medical bills, but YES a diagnosis!!!! I have a brain cyst, right smack in the center of my brain a Pineal Gland Cyst to be exact, it has a name, I call it something else, because it is taking my independence and self-worth day by day little by little. When I was diagnosed I was told "there is nothing they can do, it's just to risky to remove, I needed to adjust to living a sedentary life" - "WHAT THE HELL" I wanted to shout at the dr. I run, I'm a runner, I have three active boys, four if you include my husband who is very active! No I couldn't accept that; I have survived far worse, I thought "I can do this"..... After doing my own research and fact finding using the internet I had so much hope, a dr. in LA performs the necessary brain surgery in which the cyst is removed endoscopically using a tool designed by him going in under the brain. This isn't offered local to me or by any other doctors that I have found - just him! It is less invasive and the recovery would be short, "my problem was solved".... or so I thought! Then comes the insurance and cost - the surgery cost is $109,955 of that my insurance company will pay $11,804.94 because the dr is out of network - that means I have to come up with $98150.06.... The surgery was scheduled for 2/17 - good things happen on the 17th (two of my boys were born on the 17th of the month) - however now I can't keep that date because I will not have money in time. I have never in my life asked for a hand out - I have worked for what I have and continue to work this very day - when most people in my same situation go out on disability. I have been very private; only my husband has seen me at my worst! I put on a happy face and press on - I have learned to mask my pain, create a gate that hides my occasional stumble and put on make-up so I can't cry.... When I'm overwhelmed and can't hold back the tears, I take the dog out back to "play ball" so I can cry and not burden my kids. I realize life is not all about me, I wish I didn't need to ask for help and could just quietly take care of this on my own; but the surgery needed to restore my health far exceeds my own resources. I am humbly asking for help - imagine I have a refreshing glass of lemonade to sell - life gave me lemons I made lemonade, would you like to buy a cup?
Organizer
Kimberlie LaFavor
Organizer
Beaverton, OR