Help Baby Arianna

As some of you may know our youngest daughter Arianna Olivia has been diagnosed with a very rare neurological disorder known as Aicardi Syndrome. 

Life expectancy is short, there is no treatment, and there is no cure. 

The malformations & vascular malignancy carries a long list. Arianna battles multiple seizures every day, she is currently on 4 different seizure medications and because those are not controlling the seizures they are wanting to start a regime of steroids before we explore other possible options.

She is the bravest, strongest little person we know. 

Arianna needs specialized care as well as specialized therapy. We currently live in a small rural town in MT which does not offer any of the specialized care she needs. Due to that they have had to fly Arianna away from home 3 times, and she is only 5 months old. She also needs specialized therapy, another thing that MT does not offer. In order for Arianna to get the best possible care and have the best quality of life she needs to be close to a specialized children's hospital. Because of this we are trying to relocate near Seattle children's hospital but funds are tight, especially with all the traveling we have to do. 

Many have asked how they can help; the best way for anyone to help right now is financially, I know this is a BIG request, as many battle with financial issues, but we are trying to move ASAP for Arianna. We have seen the difference between general care and the specialized care she needs, and it is imperative that she receive the specialized care she so desperately needs, in fact this could make the difference between life and death for her as her seizures have caused her to stop breathing on several occasions, requiring multiple resuscitations and CPR.

We can’t tell you all how grateful we are for the love, support, and prayers for Arianna. Prayers are always greatly appreciated and encouraged as GOD is the only one that can truly work a miracle for Arianna! We thank you all soo much for what you can do!

You can also follow Arianna's journey by adding her mother kellyann Turman on facebook. Arianna had to be flown to the hospital this morning but they had to wait 3 hours for the wind to calm down.  Anything will help this family!