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Khiannahs 4th Birthday Memories

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Friday 4th October marks my best friends beautiful little girls 4th Birthday! For those that arent aware Khiannah suffers from Leighs Syndrome, which is a severe Neurological disorder. Unfortunately this awful disease is terminal and means we really dont know how long we will have our gorgeous Kiki!  Khiannah is a tough little cookie fighting this awful disease with her contagious smile and constant sparkle in her eyes! Although this disease has taken her mobility and affects her hourly.. she makes up for this with her cheeky character and sassy charisma ! Her amazing parents are staying as strong and as positive as possible at such a heartbreaking time, keeping routine in thier lives with her caring older brother, as best they can.  My aim is to help them throw her the BEST BIRTHDAY BASH there has ever been to create beautiful memories for her and her family!  On Friday 4th October I will be channelling my inner Kiki strength and completing a mini triathlon for my mini bezzie! I will complete 4000m ski, 400 calorie bike and 4k on the treadmill I would truly appreciate any support towards celebrating Khiannahs 4th birthday in style with her family and friends around her

Organizer

Claire Pugh
Organizer

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