Bring Weston Home

My name is Wendy Lamarre and I am 31 years old. I am a full time medical assistant for Prohealth Physicians and I am a pround single mother of a 3 Year old boy named Weston. He was born on September 20, 2011.   On July 28 2013, when Weston was 22 months old it was discovered that he had a brain tumor in the back of his head the size of a baseball.  It was later diagnosed as ATRT.  It is a rare and aggressive brain cancer that attacks the brain, spine and organs.  There are only between 10 and 30 cases reported per year and the survival rate for children under 2 is 2%.  2 days after the discovery of his tumor he had a 14 hour surgery to remove as much of the tumor as they could.  An MRI revealed that the tumor was attached to brain stems and could not be completely removed, but to everyones surprise the tumor was completely resected.  But westons battle wasn't over. As a result of his surgery Weston developed a condition called cerebral mutism.  It is a condition in which you lose your ability to talk, walk and see. He also had to get a shunt inserted in his brain to help drain fluid that isn't naturally absorbed by his body. ( another surgery) We spent the next 6 months straight on the oncology floor at CCMC. I quit my job to be with him and get involved with his care as much as possible. I learned everything I needed to know to help take care of him.  His cancer required 51 weeks of aggressive chemotherapy and six weeks of strong radiation therapy to his brain. He had another surgery to insert two ports for chemotherapy.  One in his brain and one in his chest.  He also underwent intense physical, occupational and speech therapies to help try and regain his motor skills and speech.  During his chemotherapy he stopped eating and a G-tube was placed so he could receive his daily nutrition which required another surgery.  The Chemotherapy was also ototoxic so he became severely deaf in both of his ears. He now wears hearing aides. Everyday was a fight for his life.  The chemo affected him so much that he received blood transfusions and platelet transfusions on a weekly basis.  He often times started bleeding from his gums, nose , and even his toenails.  He also had  a brain hemorrhage due to platelet loss.  He spent his 2nd birthday in the hospital as well as Halloween thanksgiving and Christmas.
After six months in the hospital, on January 2nd, Weston finally got to go home.  His chemo was half way done.  Even thought he got to go home he still had a long road ahead of him.  Was was discharged on 16 different medications, a G-tube that ran continuously and was hooked to an IV pole, and had an IV to administer IV only medications.  Unfortunately I could not afford to hire a private nurse to help me with everything so I tended to westons needs myself.  I was up every four hours at night to administer medications and make sure his G-tube bag was full and gave him daily intramuscular injections to help his immune system. 
Even though Weston was home everyday now He was still required to go to the hospital for chemotherapy every 3 weeks for a 5 day admission.  He also had spinal taps every six weeks to check for new cancer cells and growth.  When he was admitted in the hospital we still had to g to the oncology clinic at the hospital 2 times a week to check his blood work. They checked his platelet count and hemoglobin count and he still had to get blood ad platelet transfusions once a week.  When he wasn't getting chemotherapy and transfusions at the clinic he still had to get admitted to the hospital if he got a fever.   He ended up getting a fever every time he got chemotherapy because it wiped out him immune system and he was prone to infection.  So to make a long story short even though he was discharged from the hospital we still basically lived at the hospital for a year and a half.
On September 28 Weston received his last dose of chemotherapy and was announced cancer free and in remission.  He still had to go to the hospital once a week for blood work checks and sometimes transfusions but it was finally starting to get easier. He still cant walk or talk but he was able to get his G-tube removed.  On October 16th his immune system was starting to get better so he was able to attend the half a day program and preschool for kids with special needs. He started receiving more physical therapy and occupation therapy and was finally able to be with kids his age.  I was also able to go back to work and was rehired at my job as a medical assistant. He is also going to daycare fulltime.
But its still been hard for him.  He developed muscle atrophy in his muscles because he was immobile for so long so he still cant walk but he is crawling. His communication is also very limited.  He only has a vocabulary of about 15 words and you cant have a conversation with him.  His diet is also limited because he lost muscle strength in his jaw so he cant chew foods.  He eats mainly soft foods that don't have the be chewed.   He still has both of his chemo ports but he cant have surgery yet because the doctors said it can take a few months for his immune system to be completely restored.  His teeth are also very decayed because the chemo ate away at the enamel but we haven't been able to do anything because a dentist wont do a surgery until 6 months after his chemo is over because they want to make sure his immune system is good so he doesn't get sick.
So now that I have given you my background and basically westons life story let me express to you my problem.
On November 5 Weston attended daycare. he was there all day.  I dropped him off at around 7 and picked him up at around 430. It was a typical day for us.  We ate dinner, watched tv and put him to bed. The next morning when I was getting weston ready for daycare, I noticed a rash in the front of his diaper area.  I put diaper rash cream on it and we went on with our normal day.  I got him dressed and I brought him to daycare so that I could go to work.  When I got to daycare I told them that he had a diaper rash so I put cream on it but he should be ok.  They said OK and I left.  A half an hour after I got to work I received a phone call saying that weston had some bruising in his groin area.  I immediately left work and picked him up.  I went straight to the clinic at ccmc.   I did this because I was advised that whenever there was something abnormal about his behavior, appearance or health to bring him in.  It was typical for this to happen often. 
When I arrived at the clinic, a doctor who is not westons usual oncologist examined him.  She saw bruising and said she could not determine how they happened.  She told me she was going to send me to the SCAN department to get a second opinion.  She called to get me an appointment there immediately and before running any further tests she called DCF.  I brought Weston to SCAN and he was examined and photographs were taken.  DCF was called but Lab work and imaging was not done until after DCF was called.  When westons lab work did come back it showed that His PTT was abnormal and per his oncologist he was a bleeding risk and his blood did not clot correctly.  Neither DCF nor I was informed of this information until after DCF was called and charges by the Bristol Police were charged against me.  I have documentation of his abnormal lab work and documentation of the doctor saying he is a bleeding risk.  Later that night a detective from the police department came to the hospital and told me I had to go down to the station and make a statement.  When I arrived I was interrogated and asked if I would take a lie detector test.  I told them I would take one but they never gave it to me.  When the statement I made was read out loud to me it said I was doing this voluntarily even though I had to and I was not informed that I had the right to a lawyer.  When I told him it wasn't voluntary and that he told me I had to, he got defensive and yelled at me.  After my interrogation I left the station. I would also like to add that I have never had DCF involved in my life and I have a clean record
Two days later DCF got  temporary custody order and I was charged by DCF with neglect and child abuse.  Weston was placed with my mom and I am only allowed to see him for 2 hours a week supervised by DCF. 
I went to court on November 21.  My lawyer and DCF came to an agreement that I  would do what they wanted which included going to counseling and parenting classes, and having supervised visits, and agreeing to any tests they might want to do.  My lawyer said I would agree to do those things if DCF agreed to do an MRI and do an investigation on a hip flexor strain.  Westons oncologist said that it is a possible explanation as to why weston had bruising because his PTT was high.  DCF was supposed to inform SCAN of the agreement.  I have done everything they asked of me. I am in counseling and I have my supervised visits.  I have asked several times about my parenting classes and DCF will not give me any information of the class that they want me to take. Westons MRI was never done and when I confronted SCAN about the hip flexor strain she knew nothing about it.   The daycare weston attended the day before was never investigated and when I asked DCF about it they said they were not going to investigate them even though he was there all day the day before.  Both westons oncologist and neurologist have told DCF that weston needs to be home with me and they have no concerns about me harming my son. I also have documentation of them saying that.  DCF wont listen to them and said the doctors never said that.
I was never charged with anything by the police and DCF has not found anything leading to the fact that I did anything.  They refuse to find an answer as to what happen to Weston if it doesn't have to do with me being guilty.  I even brought up how when he was at daycare a child could have stepped on him or kicked him since he is unable to walk.  He can only crawl and he is in a room with kids who are able to walk, run, and have a lot more strength than him.  They said a kick wouldn't leave a bruise.  SCAN determined that it was made by blunt force but aren't doing any investigating that they agreed to by the lawyer.
I have been lied to, and mistreated.  When I was upset about the temporary custody order, my case worker told me I was being over dramatic and looking for a pity party.  I was completely insulted.  Of course I am upset about my son getting taken away.  I almost lost him.  He went threw hell and back and was now getting taken away from me. DCFs behavior is going against everything that they claim to be.  They aren't working to keep my family together, they are tearing it apart.  I feel so helpless with this situation I have considered going to the news and that is my next step.
My rights have been violated and weston has been put into a life of confusion and instability.  It is unhealthy for him to be in the situation he is in.  I have studied his disease and know his health and medical necessities more than anyone and I am the best person to care for him.  I would by no means hurt my child in anyway or put him in the hands of someone who would.  No one wants what's best for him more that me and right now this is not what's best for him.  Cancer is a disease where you need to feel loved and supported to beat it and by taking him out of my home and making him feel abandoned is a recipe for disaster in his fight against cancer.  I fought to get him where he is today in terms of his health and I refuse to stop fighting now.  This is why I am asking for help.  I need funds for legal aide so tha i can get Weston home where he belongs. I can not continue to be without my son.  I need him to be home where he is comfortable and where he is loved and belongs.  Again I am desperate, please help me. 
Thank you for taking the time to read this, and I hope you can help me.