Helping Crue Get Wheels!

Today we got some very frustrating news...You see that cutie up there, That is little Crue Allred.  Joe and Aubrey Allred along with big brother Easton have been in the process of trying to get him a wheelchair for months now. They received a phone call from the insurance company today and they have denied his claim AGAIN. Aubrey was told that it is not justifiable nor a necessity right now…WHAT???  For those of you who don't Crüe, Crüe was born with Spina Bifida and is paralyzed from the waist down. We were told he's to young for a chair, and to stick him in a stroller. I ask those of you with small children under the age of 5 to imagine being told that your child must be confined to a stroller and may not "walk" or have any kind of independence until the age of 5. How would you feel about that? Yes Crüeis only 2 but his mobility shouldn't be determined by a doctor, that works for the insurance company, who has never met him. Crüe is such an amazing and determined little boy and is capable of a lot more then they think. I don't know where he would be without his little zipzac chair. That chair has given him his own independence and the ability to explore and learn on his own. He's been using that chair for almost 2 years now (no thanks to the insurance). I just wish that insurance companies would understand that if they gave young disabled children the chance to have mobility at a young age, the difference they'd be making in their lives. An able child learns to walk at the age of one so why is it not okay for a young disabled child to learn to use a chair at the age of two? I know there are families dealing with things far worse than not being able to get a wheelchair but I just needed to vent. If there is anyone out there dealing with these issues please know you're not alone! Thanks for hearing my frustrations. Also the mobile stander he is in, in the photo above is a loaner from his PT (because insurance won't cover that either).