TEAM REED-FUNDRAISER

Reed’s story begins on December 3, 2012, a normal pregnancy, a normal birth, a normal baby, a normal toddler, and then, on November 1, 2014, Reed went down for a nap and when he woke, he struggled to stand and take steps. He was falling a lot and whining, not crying, but frustrated. The family continued to watch him struggle and noticed his right foot turning in. After no clear answers as to why this was happening, Jesse, Erika and Reed headed for Iowa City to see a neurologist.

 

On February 25, 2015, Reed was diagnosed with Leukodystrophy.

 

Leukodystrophy is a group of disorders characterized by degeneration of the white matter in the brain. The leukodystrophies are caused by imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fibers. Myelin in the central nervous system (CNS) is produced by oligodendrocytes. When damage occurs to white matter, immune responses can lead to inflammation in the CNS, along with loss of myelin which impairs brain function, sight, and motion.                                  
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Stay up to date with Reed at www.teamreedcrosby.blogspot.com