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Conner&Braydon's Fight

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Hello my name is Krystal and I'm trying to help oragnize a fundraiser to help my family. My parents are very hardworking, christian parents of 4. My older bother, myself, and two little brothers. March 20th 2011 my mom called me with the most excitingly news she was Pregnant. As surprised as we all were we were extremly happy! We followed her pregnancy week by week waiting to find out if we were having a new little brother or sister. On July 1st was her gender sonogram. She called to tell me I was having another brother Conner!! But not only did she find out he was a boy, the doctor noticed some abnormal signs. She was referred to a specialist in St.Louis. July 7th her, my dad, and grandparents made the 145 mile trip to meet with a specialist. After doing serveral test they reach the diagnoisis of Encephalocele in the back of the skull. Only about 1 in 10,000 babies in the U.S are born with this each year and of those babies only about 55 percent survive and of those babies 75 percent have a form of mental deficit. The specialist told my family that the best thing they could do was to abort. His words were there was no reason my mom should go through labor to have a stillborn baby. They were given 24hrs to make their decision. The next morning they met with another specialist to perform an echo to check Conner's heart. His heart was beating perfectly. As soon as they heard his heartbeat it was then they knew that little heartbeat was not their choice to stop. They knew at this point it would be a matter of finding a different specialist and Prayer. They met with a nero surgeon and team that promised he would do everything he could to help save Conner's life. This meant lots of trips to St.louis and to her obgyn. On October 21st 2011 Conner was born by c-section weighing 5.5 ounces and his encephalocele was much larger than they expected, he had Hydrocephalus,and nearly blind but God bless he made it through delivery and his lungs and his heart were as strong as they could be. At 3 days old Conner had his first brain surgery to remove his encephalocele. This was a tough surgery for such a little guy but he made it through. A feeding tube was placed. On Oct 31st his first Halloween Conner had his second surgery to place a shunt to drain spinal fluid from his brain to his stomach. On November 11, at 3 weeks old Conner got to go home. Conner recieved different in home therapies 7 times a week. In Feburary 2012 Conner had his 3rd surgery for a shunt revision, due to the first one stop working. Conner has had eye surgery, brain surgeries,he wears glasses, he used a walker to help he learn to walk. Now that he can walk he has to use leg braces. He sees a nerosurgeon, optician,neurologist,audiologist,genetic specialist,Orthotics all in St.louis. In Late March 2013 Braydon my 9 year old other little brother was rushed to St.louis childen's hospital after coming home from what we thought was a stomach bug. Braydon's sugar was up near 800 and we learned that Braydon has type 1 diabetes. There is no diet alone that will cure juvinelle diabetes, it is something Braydon will face his entire life. He got no less than 4 insulin shots a day, with poking his finger to check for blood anytime he ate, wanted a snack, or just felt weird sometimes this would mean 10-12 times a day. In december 2013 Braydon caught a viral sickness that put his sugars over 500 and he ended up in St.louis until they were under control again. April 17th 2014 braydons sugar skyrocketed towards the 800s and his body went into DKA. He spent quite a few nights in the children's hospital. July 9th 2014 Braydon got an internial montior to check his sugar so he no longer has to prick his finger so many times, And in October Braydon recieved an insulin pump so he no longer has to have so many shots a day. He is now a loving 11 year old who helps take care of his little brother, he went to state with the special olympics in bowling, and he loves to play soccer and basketball when his sugar allows him. He isnt a normal 11 year who can sneak candy in their room. That 1 candy bar could cost Braydon his life. Now that he has his pump and monitor his life is alot easier but this all doesnt come without a price. My parents work 48-60 hours a week to cover these medical bills. My mom is an Emt/dispatcher and my dad is a tankerman. They make atleast 1 trip to St.louis a month if not more that is a 288 mile round trip. They pay extra each time they see a specialist in St.louis. They have medical bills being deducted from each check and are recieving court papers on the ones they can't pay yet. After alot of convincing my mom has agreed to let me open this for them. Anything helps! It truly does! I will be starting a facebook page as soon as I can if you would like to follow they're story just leave a message! It's not all about money. These boys need prayers, and support. Both of their special needs will be a lifetime. Thank you all!





Organizer

Krystal Terry
Organizer
Vienna, IL

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