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Narcoleptic' s Need YOUR help

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We are a group that began a few years ago with its founder, and became inactive after a few months. Towards the end of 2016, I decided to ressurrect the group. With new goals in mind, and a mission to file for non-profit status, which is very expensive. At this moment we are the only Support Group for Narcoleptics in hundreds and hundreds of miles. We have members not only in the Dallas-Fort Worth area, but also members from Oklahoma and Louisiana. At this very moment we have 257 members, and are growing everyday as more people become aware of the group, and seek help and support for their illness or for a member of their family.
Dallas-Fort Worth is one of the highest populated areas of PWN (persons with Narcolepsy) in the country. Our goal is to provide support, and resources to PWN in need.  Poverty, depression, suicide, and isolation from family and friends are just some of the many issues PWN deal with daily, and will deal with for the rest of their life. 
Narcolepsy is a misunderstood chronic illness. There are very few doctors who know how to diagnosis it, and even fewer that have found positive ways to help their patient live day to day with an quality to their life. There are no cures for Narcolepsy.  Only medications to manage symptoms. Many of the medications that we are required to take in order to function are often dangerous and considered narcotics. Cataplexy is a secondary symptom, only associated with Narcolepsy. It affects 75% of PWN. Cataplexy is defined as the sudden loss of muscle function. However, mental confusion, short term memory loss, and many other symptoms occur to the average PWN. Narcoleptics have a high rate of depression, and suicide due the debilitating and life changing aspects of the illness. 
There are groups actively working with Pharmacuetical companies to work towards a cure, or better manage symptoms, as well as make doctors aware of how to detect possible signs, and diagnose. That is not our goal. Our goal is to serve the community of people who have already been diagnosed, and are now left feeling hopeless, and alone. PWN often feel isolated, misunderstood, and many have never met anyone else like themselves. Since the restart of the group, we have had outstanding response from parents of young narcoleptics, as well as adult PWN. We have found that the medical community has not been our greatest ally. Together, by sharing our experiences with triumphs and failures we are learning to manage our disorder together.
The money that you donate will be used to expand our services through a website, which will provide video chat support groups to our many members who live farther out, or who are unable to drive due to their condition.  We will also use the funds toward our application for Non-Profit status. We also want to expand services to the PWN in our community, by providing them with educational groups on hope to cope, as well as improve or manage their life.  Down the road we also want to provide scholarships, and other forms of support to help them thrive. I believe that when all of these things come to fruition, and we are successful, our structure can be adapted to cities across the country, that also have PWN struggling to survive. Your support will mean so much to thousands of people in our area, and can possible be the start of a wider movement to help the millions of people it effects, including family and other loved ones.
You can check us out on Facebook at
https://www.facebook.com/DFWNarcolepsyFriends/
 or on twitter @ DFWNF.

Organizer

Macy Pena
Organizer
Aubrey, TX

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