Caring for Kimber Rose
Donation protected
#careforkimber
#teamkimber
#trisomy14
Meet Kimber Rose Hall. She was born on June 23rd, 2020 weighing 7 lbs 8 oz. to Marissa and Garner Hall. The celebration of this latest addition to our family ended prematurely and was quickly replaced by fear. When she only a few hours old mom & dad are told she has a coloboma (elongated pupil) in one eye. I had no idea what that even meant and Thanks to COVID I was relying on text messages and phone calls for information.
Unfortunately, it is not just a unique looking eye, it is an indicator of a chromosomal abnormality, a syndrome. No one saw that coming, and no one really knew what we were dealing with. It took weeks for the genetic testing to come back with any answers.
Our sweet Kimber has a very rare condition called Mosaic Trisomy 14. Less than 50 people are known to have this condition worldwide and the statistics say this occurs in only 1 of 400 million babies. She has an extra chromosome 14 in SOME of her cells. As you can image having an extra chromosome interferes with normal development. For Kimber this means she is blind in one eye, wears a hearing aid in one ear, has multiple defects in her heart and she will remain VERY VERY small her entire life. There is a lot we don't know yet (including things we don't even know to expect).
Her mom calls her a complex potato. She is our gift. She is exactly as she was meant to be, and she is very loved.
Her doctors have determined the defects in her heart will not heal on their own and surgery is necessary before she's even 6 months old. Kimber, Kimber's parents AND her big sister Raelynn (3yo) are preparing for their temporary relocation from Broken Arrow to Kansas City, MO where she will undergo open-heart surgery at Children's Mercy Hospital. Kimber's hospital stay is estimated to be 12-15 days, including pre-op tests, providing there are no complications. All the repairs will be made in this single surgery and the expectation is for her heart to work exactly as it should once she's healed.
This GoFundMe has been established on their behalf to assist them with travel and lodging expenses as well as their out of pocket medical expenses not covered by insurance. The entire family is hoping and praying for a generous outpouring of donations to help with these extraordinary costs, as well as your prayers that our little warrior mends quickly. She deserves a chance to have an amazing life.
Donations can also be sent by:
Venmo Lindsay-N-438
CashApp $LindsayN438
Paypal
Or you can email me direct at [email redacted] to discuss any other arrangements.
Don't worry, These donations count too! We will update our progress here to include any donations received outside this platform.
A Facebook group "Caring for Kimber" has also been created where the family will provide updates as they make their way through this. If you would like to know more about Trisomy 14 click the link the below and reach out to us. We would love to share what we have learned.
https://www.facebook.com/groups/817538869063624/?ref=share
#teamkimber
#trisomy14
Meet Kimber Rose Hall. She was born on June 23rd, 2020 weighing 7 lbs 8 oz. to Marissa and Garner Hall. The celebration of this latest addition to our family ended prematurely and was quickly replaced by fear. When she only a few hours old mom & dad are told she has a coloboma (elongated pupil) in one eye. I had no idea what that even meant and Thanks to COVID I was relying on text messages and phone calls for information.
Unfortunately, it is not just a unique looking eye, it is an indicator of a chromosomal abnormality, a syndrome. No one saw that coming, and no one really knew what we were dealing with. It took weeks for the genetic testing to come back with any answers.
Our sweet Kimber has a very rare condition called Mosaic Trisomy 14. Less than 50 people are known to have this condition worldwide and the statistics say this occurs in only 1 of 400 million babies. She has an extra chromosome 14 in SOME of her cells. As you can image having an extra chromosome interferes with normal development. For Kimber this means she is blind in one eye, wears a hearing aid in one ear, has multiple defects in her heart and she will remain VERY VERY small her entire life. There is a lot we don't know yet (including things we don't even know to expect).
Her mom calls her a complex potato. She is our gift. She is exactly as she was meant to be, and she is very loved.
Her doctors have determined the defects in her heart will not heal on their own and surgery is necessary before she's even 6 months old. Kimber, Kimber's parents AND her big sister Raelynn (3yo) are preparing for their temporary relocation from Broken Arrow to Kansas City, MO where she will undergo open-heart surgery at Children's Mercy Hospital. Kimber's hospital stay is estimated to be 12-15 days, including pre-op tests, providing there are no complications. All the repairs will be made in this single surgery and the expectation is for her heart to work exactly as it should once she's healed.
This GoFundMe has been established on their behalf to assist them with travel and lodging expenses as well as their out of pocket medical expenses not covered by insurance. The entire family is hoping and praying for a generous outpouring of donations to help with these extraordinary costs, as well as your prayers that our little warrior mends quickly. She deserves a chance to have an amazing life.
Donations can also be sent by:
Venmo Lindsay-N-438
CashApp $LindsayN438
Paypal
Or you can email me direct at [email redacted] to discuss any other arrangements.
Don't worry, These donations count too! We will update our progress here to include any donations received outside this platform.
A Facebook group "Caring for Kimber" has also been created where the family will provide updates as they make their way through this. If you would like to know more about Trisomy 14 click the link the below and reach out to us. We would love to share what we have learned.
https://www.facebook.com/groups/817538869063624/?ref=share
Fundraising team (2)
Lindsay Newton
Organizer
Broken Arrow, OK
Marissa Hall
Beneficiary
Jennifer Newton
Team member