Chiari Malformation Awareness
This isn’t just any random dancing dinosaur!
I'm Dancing to raise Chiari Malformation Awareness.
The costume is just to grab peoples attention.
Currently my wife's medicine costs $1000+ every month
The biggest cash problem will come from surgery option is the states as Canadian doctors seem to consistently not want to help her because of the risks.
The total bill might ens up around $150,000
Right now, we are also trying to raise enough funds to provide Brittni with a Power scooter, so she can have some the chance to go out in comfort and have some Independence, where as right now she always needs someone to help her get out of the house.
Using a walker to get by, she can only move around for about 15 minutes before becoming incapacitated by crippling pain
Every chance I have, I will be raising awareness for Chiari Malformation! (kee-AH-ree mal-for-MAY-shun)
https://twitter.com/Dancing4Chiari
Chiari Causes the brain to swell and extend into the spinal cord. This causes body wide chronic nerve and muscle pain and weakness. But also SO much MORE!
Click Here for Facts about Chiari Malformation
--Lets Spread Awareness and get working on a cure!
This is a very severe condition.
This causes my wife to live in constant agony.
Forcing her to cope with intense, daily pain and extensive nerve and muscle damage caused by the condition
She’s been miss diagnosed for 25 years.
Most DOCTORS don't even know what this is! .
Because her brain has grown so rapidly into her spinal column, doctors have told us Brittni's condition has become too advanced for the surgery that could relieve some pain.
She’s a trooper, always trying to keep a smile on her face. She’s definitely a Chiari warrior!
Just to get out of bed in the morning I want to clap for her.
She makes me so proud to be her husband.
I do landscaping and currently doing snow removal. But when im not out shoveling snow, or taking care of my wife, I want to be out spreading awareness.
That’s when I decided to hit the streets in full, inflatable dino gear to raise money for my family and more importantly, spread awareness This terrable debilitating condition.
More of our story here!
http://www.calgaryjournal.ca/index.php/profiles/3750-calgary-s-dancing-dino-daniel-petke-takes-to-the-streets-to-bring-attention-to-his-wife-s-brain-disorder