Oh Henry! Heart Fund
Donation protected
Henry's story began on the 18th of November, 2018.
He was born some 3 weeks early and was quickly diagnosed with right dominant AV Canal, coarctation of the Aorta, VSD and ASD. Despite undergoing multiple prenatal echo cardiograms, his diagnosis did not completely foretell the journey that would eventually ensue.
Henry has had to undergo a series of procedures to repair these anomalies and has spent the first months of his life at Lurie's Children's Hospital under the watchful care of the many excellent professionals in the cardiac unit. Home now, enjoying his big and busy family, his journey continues. Henry is awaiting the Glenn procedure, trying to gain weight, do his OT, PT, sleep, smile, roll, wave and play, while the rest of the kids are dodging cars, dogs, random viruses and general, overwhelming exhaustion. School has started, Vincent off to Kindergarten and the others off to SIJ and Hinsdale Central. The family routine is centered around caring for Henry and Joanna carries this burden with grace.
As a family of strong faith, we have put our trust into God that no matter what his plan has in store for us, we will do our part and provide as much love and support as we possibly can.
For those reading this, we appreciate your support and will update you upon on any changes or progress in Henry's long journey ahead.
https://www.caringbridge.org/visit/henrybenedictagne
He was born some 3 weeks early and was quickly diagnosed with right dominant AV Canal, coarctation of the Aorta, VSD and ASD. Despite undergoing multiple prenatal echo cardiograms, his diagnosis did not completely foretell the journey that would eventually ensue.
Henry has had to undergo a series of procedures to repair these anomalies and has spent the first months of his life at Lurie's Children's Hospital under the watchful care of the many excellent professionals in the cardiac unit. Home now, enjoying his big and busy family, his journey continues. Henry is awaiting the Glenn procedure, trying to gain weight, do his OT, PT, sleep, smile, roll, wave and play, while the rest of the kids are dodging cars, dogs, random viruses and general, overwhelming exhaustion. School has started, Vincent off to Kindergarten and the others off to SIJ and Hinsdale Central. The family routine is centered around caring for Henry and Joanna carries this burden with grace.
As a family of strong faith, we have put our trust into God that no matter what his plan has in store for us, we will do our part and provide as much love and support as we possibly can.
For those reading this, we appreciate your support and will update you upon on any changes or progress in Henry's long journey ahead.
https://www.caringbridge.org/visit/henrybenedictagne
Organizer
Oh Henry Heart Fund
Organizer
Hinsdale, IL