Penelope our Fighter 1 in 1 Million
Donation protected
Penelope Rose came into the world with a rare form of dwarfism (skelatal displasia) that rendered only a 10% chance of survival.
This little warrior princess not only survived, but thrived. Miracle by miracle; prayer by prayer and day by day she reached milestones, broke through boundaries, and re-defined her 1 in 1 million diagnosis to the awe inspiring amazment of the medical community, her family and friends.
Due to her anotomical size, Penelope's airway is much smaller than average and a viral infection may become serious and even deadly. This was the case in the early hours of May 7th when Julie awoke to a strange sound and found her daughter gasping for air. During the ambulance ride Penelope stopped breathing entirely and upon admission at Grossmont Hospital was intubated repeatedly while receiving CPR. The lack of oxygen for such a prolonged period of time resulted in a brain injury that has limited her neurological function and provided a mountain of additional challenges. Yet, as always; this little lady had a few surprises up her sleeve. Just opening her eyes was not expected, then making eye contact with mommy and eventually nursing again. The family remains hopeful that their beautiful daughter will regain mental capacity and meet each new challenge with the warrior spirit that she came into this world with once again.
Most importantly the Hemmingson Family covets your prayers. It has been through their unwavering faith, the provision of God by whom this child was fearfully and wonderfully made and by the generous outpouring of love and support that has kept them rock solid.
As well as buliding up a savings for another rainy day that we pray will never come, currently; the family must address the following financial hardships:
-Funding for additional hearing aids and additional testing.
-Occupational Therapy (fine motor development)
-Physical Therapy (gross motor development)
-Speech Therapy,
-Vision Therapy,
-Monthly Co-Pays for medical equipment including: nebulizer, oxygen, feeding pump, secretion suction machine.
-Funds to see out of network specialists: nuerologist, ENT, orthopedics, opthamologist, audiologist, high risk doctor and a visit to Du Pont Childrens Hospital in Willmington, Delaware to seek counsel with a renown DwarfismSpecialist.
Their personal goals are attainable. With your help they desire to live at home together outside of the hospital, meet all milestones again, to provide a good quality of life for all three of their children. To be in a position to say yes to any opportunity for this precious child to advance and thrive. They also desire to give back to the community as a whole, spreading awareness about dwarfism, using their unique circumstance to address anti-bullying and embracing differences in children.
For a family that has always been so generous and humble, it is an honor to request any donation on their behalf. whether small or large, the Hemmingson family will be blessed and inspired by your generosity to aid in Penelope's fight for life. She is truly 1 in 1 million.
Lacy
A little backstory:
I will never forget the day that I got the call and a picture of tiny pink Nike's...It's a girl!!!
Just 4 months prior, my dear friend had been mere weeks away from closing the baby factory for good. "We just feel that we can responsibly support two children, we would both love more, but finances are a consideration." I was crushed. She and her husband are the kind of parents that everyone aspires to be: patient, wise, happy, energetic, supportive, and devoted to one another. I told her to pray about it...something in her voice told me that she wasn't 100% comitted to their descison, and; I knew her husband's heart would delight in one more. They were in for quite a surprise when just days later Julie discovered that she was pregnant. The 20 week ultrasound revealed that their two boys would welcome a baby sister, and for one sweet hour their family revelled in the good news.
Then the second phone call...the crushing news.
The baby had a rare form of skelatal displasia (Dwarfism.) The prognosis lended less than a 10% chance at survival. IF she made it to term, she would most likely perish upon delivery and IF she made it into this world her likelyness of reaching any normal milestones was less than bleak, in fact it was statistically 1 in 1 million.
The fact that this discovery was even made was concerning to parents who choose not to undergo any genetic testing as "every child is a gift" has been their motto. Now faced with a decision to make, they relied on eachother and on their core beliefs. This child, unique and delicate as she was, had to be given a chance. Every checkup, fluid level, x-ray confirmed the worst and yet they held on to the promise of a future.
It was during these months that I saw my friends come into the roles that they had been born to play. They are at the heart, courageous, kind and extraordinary human beings that live in God's Grace and wait on the miracle. Well...their miracle arrived on June 24, 2016 in the form of a baby girl who they named Penelope Rose (a name that I noted: held the historical importance of one of the strongest, most fearless, wise and heroic literary ladies of all time.)
Life with Penelope has been a constant reminder of the power of the almighty God and that in all circumstances, the soul is capable of these three things faith, hope and love...the greatest of which, is love.
If you would like more information or have resources that may help the family please vist-------- or send email coorespondance to----------
Please Share this with everyone you know. It is such a rare and wonderful opportunity in this lifetime when we are presented an opportunity to change a persons life in such a monumental way. Thank you in advance for your assistance as we wait on the miracle.
This little warrior princess not only survived, but thrived. Miracle by miracle; prayer by prayer and day by day she reached milestones, broke through boundaries, and re-defined her 1 in 1 million diagnosis to the awe inspiring amazment of the medical community, her family and friends.
Due to her anotomical size, Penelope's airway is much smaller than average and a viral infection may become serious and even deadly. This was the case in the early hours of May 7th when Julie awoke to a strange sound and found her daughter gasping for air. During the ambulance ride Penelope stopped breathing entirely and upon admission at Grossmont Hospital was intubated repeatedly while receiving CPR. The lack of oxygen for such a prolonged period of time resulted in a brain injury that has limited her neurological function and provided a mountain of additional challenges. Yet, as always; this little lady had a few surprises up her sleeve. Just opening her eyes was not expected, then making eye contact with mommy and eventually nursing again. The family remains hopeful that their beautiful daughter will regain mental capacity and meet each new challenge with the warrior spirit that she came into this world with once again.
Most importantly the Hemmingson Family covets your prayers. It has been through their unwavering faith, the provision of God by whom this child was fearfully and wonderfully made and by the generous outpouring of love and support that has kept them rock solid.
As well as buliding up a savings for another rainy day that we pray will never come, currently; the family must address the following financial hardships:
-Funding for additional hearing aids and additional testing.
-Occupational Therapy (fine motor development)
-Physical Therapy (gross motor development)
-Speech Therapy,
-Vision Therapy,
-Monthly Co-Pays for medical equipment including: nebulizer, oxygen, feeding pump, secretion suction machine.
-Funds to see out of network specialists: nuerologist, ENT, orthopedics, opthamologist, audiologist, high risk doctor and a visit to Du Pont Childrens Hospital in Willmington, Delaware to seek counsel with a renown DwarfismSpecialist.
Their personal goals are attainable. With your help they desire to live at home together outside of the hospital, meet all milestones again, to provide a good quality of life for all three of their children. To be in a position to say yes to any opportunity for this precious child to advance and thrive. They also desire to give back to the community as a whole, spreading awareness about dwarfism, using their unique circumstance to address anti-bullying and embracing differences in children.
For a family that has always been so generous and humble, it is an honor to request any donation on their behalf. whether small or large, the Hemmingson family will be blessed and inspired by your generosity to aid in Penelope's fight for life. She is truly 1 in 1 million.
Lacy
A little backstory:
I will never forget the day that I got the call and a picture of tiny pink Nike's...It's a girl!!!
Just 4 months prior, my dear friend had been mere weeks away from closing the baby factory for good. "We just feel that we can responsibly support two children, we would both love more, but finances are a consideration." I was crushed. She and her husband are the kind of parents that everyone aspires to be: patient, wise, happy, energetic, supportive, and devoted to one another. I told her to pray about it...something in her voice told me that she wasn't 100% comitted to their descison, and; I knew her husband's heart would delight in one more. They were in for quite a surprise when just days later Julie discovered that she was pregnant. The 20 week ultrasound revealed that their two boys would welcome a baby sister, and for one sweet hour their family revelled in the good news.
Then the second phone call...the crushing news.
The baby had a rare form of skelatal displasia (Dwarfism.) The prognosis lended less than a 10% chance at survival. IF she made it to term, she would most likely perish upon delivery and IF she made it into this world her likelyness of reaching any normal milestones was less than bleak, in fact it was statistically 1 in 1 million.
The fact that this discovery was even made was concerning to parents who choose not to undergo any genetic testing as "every child is a gift" has been their motto. Now faced with a decision to make, they relied on eachother and on their core beliefs. This child, unique and delicate as she was, had to be given a chance. Every checkup, fluid level, x-ray confirmed the worst and yet they held on to the promise of a future.
It was during these months that I saw my friends come into the roles that they had been born to play. They are at the heart, courageous, kind and extraordinary human beings that live in God's Grace and wait on the miracle. Well...their miracle arrived on June 24, 2016 in the form of a baby girl who they named Penelope Rose (a name that I noted: held the historical importance of one of the strongest, most fearless, wise and heroic literary ladies of all time.)
Life with Penelope has been a constant reminder of the power of the almighty God and that in all circumstances, the soul is capable of these three things faith, hope and love...the greatest of which, is love.
If you would like more information or have resources that may help the family please vist-------- or send email coorespondance to----------
Please Share this with everyone you know. It is such a rare and wonderful opportunity in this lifetime when we are presented an opportunity to change a persons life in such a monumental way. Thank you in advance for your assistance as we wait on the miracle.
Organizer
Lareesa Mumford-Pope
Organizer
Spring Valley, CA