Support Emmett's Transfer to Pittsburgh

Emmett was born 9/20/23 with severe Ebstein’s Anomaly. His first open-heart surgery was at 5 weeks old, where a cone procedure failed, leading to the Starnes Procedure and BT Shunt, making him a single-ventricle kiddo. He was later diagnosed with Abernethy Malformation, a rare liver condition. After significant challenges, he was weaned off medications and oxygen support and made his way to TCU status! He had a pre-Glenn cath procedure and then the Glenn procedure on April 1, 2024. Although the surgery went well, he faced setbacks, including breathing issues that required intubation. He never truly recovered and had a cath lab procedure on April 23, 2024 to coil collateral vessels and he slowly made progress. Eventually though Emmett’s respiratory status deteriorated and he is back on a bi-pap interface on the ventilator. He has more collateral vessels that need coiled and a very small airway. The team believes at this time a transfer to Pittsburgh Children’s would be best for him. Pittsburgh has a specialist in Ebsteins anomaly who created the cone procedure. On 6/20/24 Emmett was officially accepted by a physician in Pittsburgh! Pittsburgh Children's Hospital is one of the only hospitals in America who will accept Emmett as a post-Starnes patient, with intentions of doing a cone-procedure. If the cone-procedure is successful this could mean Emmett may never need a heart transplant. We are so nervous for this journey but we can't help but think of the possibilities Pittsburgh can offer our sweet boy. It’s been a very long road and we’re still very unsure of where Emmett’s story will go but we will go anywhere to try get him the best help possible. Any money used from the fundraiser will be used to cover the costs associated with the transfer, lodging, etc so Emmett’s parents and big brother can be close by while waiting for an opening at the Ronald McDonald house!