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Madi Johnson fights Aveolar Rhabdomyosarcoma

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A couple months ago, our daughter Madi was diagnosed with a rare aggressive metastatic cancer, Alveolar Rhabdomyosarcoma. She was given a 1 in 10 chance if her cancer hadn't spread. The right side of her heart and both her lungs collapsed from the fluid both around her heart and lungs during surgery, the 2nd day in the hospital.  She spent a little under a month in PICU and the cancer ward at Primary Childrens. She had a pericardial (heart), peritoneal (stomach) and 2 lung drains for around 3 weeks. After her initial discharge from the hospital she was released only to be readmitted a couple days later, twice. 
  She has Chemo weekly, and Radiation will be everyday weekday for 7 weeks. Her whole torso will be radiated. 
  She's having quite a bit of side effects, some rare, from Chemo. Her vocal chords, eye will wonder and eye lid droops, her movements are jerky and her walk has been affected.
  She has to have physical therapy, occupational therapy, psychiatry and see a ophthalmologist. She has to have home nursing.  We also have 2 boys. 
  We will be traveling back and forth to the hospital everyday for 7 weeks.  My husband just started a new job and we have a very high deductible.  She's going to be taking much more nausea medication than she already is because of her stomach getting so much radiation.  She already got all her tattoos and mold done.
Any help would be greatly appreciated! We are so grateful for all the support we've recieved from our community and friends. We are very fortunate. Please keep Madi and our family in your thoughts.
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Donations 

  • Laura Williams
    • $5 
    • 4 yrs
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Organizer

Diana Johnson
Organizer
Orem, UT

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