Wee Jamie's Journey

On the 30/03/2022 our world fell apart when we were told our son Jamie has been diagnosed with Duchenne Muscular Dystrophy. 

 

This was instant heartbreak for us after our research on the disease. Duchenne , knowing as DMD is a terminal illness which is found mainly in boys , it effects approximately 1 in 5000 live male births.

 

DMD is a muscle wasting disease which effects all muscles in the body including lungs heart and brain. 

 

The information that we recieved is our boy will face a life of struggle, will be wheel chair bound between 8-10 years old and would deteriorate infront of our eyes , with the average life expectancy of mid 20s.

 

There is currently no cure for this disease , however we will never give up or stop fighting to save our sons life.

We are currently travelling overseas for treatments 4 times a year to help slow down his condition and improve his quality of life , however there is a financial strain where we dont recive any help from the UK goverment with treatments costing around 60k per year. Our funding soley comes from fundraising events and the kind amazing people who donate to our go fund me . We truly couldn't do this without everyone's help/support. We will keep pushing and will do anything and everything it takes to save our wee boy.

 

With all this in mind Jamie is still our little best friend he never fails to make us laugh and smile , he's just your typical boy , loves pretending he's a monster or a dinosaur chasing us around or just cuddling in on the couch watching movies . He loves being outdoors playing in puddles or sandpits , he truly is the love of our life and we will do whatever it takes to save him. We are truly grateful for any donations we may recieve no matter how little or large

 

If in the future we are lucky enough to secure a cure for Jamie all funds raised that is remaining will be donated to help other boys in our sons position to hopefully help change the lives of everyone diagnosed with this devastating disease.