Emergency Ticket For NIH
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>>>>>>>>>> Can you donate $10<<<<<<<<
I know times are tough but I believe we can hit our goal with $10 donations!!!!
Will you make that donation today and help us make our goal? I have faith that we can get lots of momentum going to get this campaign trending with your help.
Please like and share to keep it in the feeds.
We are the Gossett family of Paducah Ky and are asking for help to cover an emergency ticket to Bethesda, Maryland. We only have one week now.
James is having multiple problems right now including a tumor/mass/ nodule in his lung.
He also has calcium deposits in his brain which could be from an additional endocrine problem that has to be followed up with doctors experienced with Carney Complex.
NIH said he needed to get to Maryland asap.
Whatever this is in his lung could be very serious so time is of the essence.
*****Below is a brief history of when the medical issues started*****
My husband, James and our son, Brandon have both been diagnosed with a rare endocrine disorder/disease called "Carney Complex". James was diagnosed after years of terrible illness to the point of almost certain death and two different surgeries to remove both of his adrenal glands. The first surgery at Vanderbilt in Nashville only left him sicker for which the doctors had no answers. Meanwhile, Brandon then aged 14 was also starting to develop major unexplainable symptoms effecting every body system. In 2012 James was accepted at the National Institute of Health in Bethesda Maryland. He had been under the care at Vanderbilt and they had no answers or solutions. He had to have another emergency surgery at NIH and they confirmed he did indeed have the rare disease. There are only around 500-600 cases worldwide.
After almost a month we retuned home and sent blood samples from two of our three children for testing. Brandon tested positive for the gene mutation. Our other two children tested negative.
In August of 2013 we returned to NIH for a follow up for James and a complete work up for Brandon. We were told they would need follow ups at least once a year at NIH and at least every three months in Nashville. We haven't been able to return to NIH since 2013 because of of the costs associated with traveling. Also, in the not too far future Brandon will need his adrenal glands removed. We are heartbroken. Brandon is so young and he had first hand experience in the pain and agony his father has faced daily. We have been out of pocket for so many medical expenses over the years that we've drained all of our savings.
Please pray for our family and thank you all so much for taking the time to read our story. If you have any questions please feel free to contact us.
You can find great information about Carney Complex with the link below.
http://www.cancer.net/cancer-types/carney-complex
I know times are tough but I believe we can hit our goal with $10 donations!!!!
Will you make that donation today and help us make our goal? I have faith that we can get lots of momentum going to get this campaign trending with your help.
Please like and share to keep it in the feeds.
We are the Gossett family of Paducah Ky and are asking for help to cover an emergency ticket to Bethesda, Maryland. We only have one week now.
James is having multiple problems right now including a tumor/mass/ nodule in his lung.
He also has calcium deposits in his brain which could be from an additional endocrine problem that has to be followed up with doctors experienced with Carney Complex.
NIH said he needed to get to Maryland asap.
Whatever this is in his lung could be very serious so time is of the essence.
*****Below is a brief history of when the medical issues started*****
My husband, James and our son, Brandon have both been diagnosed with a rare endocrine disorder/disease called "Carney Complex". James was diagnosed after years of terrible illness to the point of almost certain death and two different surgeries to remove both of his adrenal glands. The first surgery at Vanderbilt in Nashville only left him sicker for which the doctors had no answers. Meanwhile, Brandon then aged 14 was also starting to develop major unexplainable symptoms effecting every body system. In 2012 James was accepted at the National Institute of Health in Bethesda Maryland. He had been under the care at Vanderbilt and they had no answers or solutions. He had to have another emergency surgery at NIH and they confirmed he did indeed have the rare disease. There are only around 500-600 cases worldwide.
After almost a month we retuned home and sent blood samples from two of our three children for testing. Brandon tested positive for the gene mutation. Our other two children tested negative.
In August of 2013 we returned to NIH for a follow up for James and a complete work up for Brandon. We were told they would need follow ups at least once a year at NIH and at least every three months in Nashville. We haven't been able to return to NIH since 2013 because of of the costs associated with traveling. Also, in the not too far future Brandon will need his adrenal glands removed. We are heartbroken. Brandon is so young and he had first hand experience in the pain and agony his father has faced daily. We have been out of pocket for so many medical expenses over the years that we've drained all of our savings.
Please pray for our family and thank you all so much for taking the time to read our story. If you have any questions please feel free to contact us.
You can find great information about Carney Complex with the link below.
http://www.cancer.net/cancer-types/carney-complex
Organizer
James Gossett
Organizer
Paducah, KY