Helpsavefrankiesherwood

Hi my name is Frankie and I will be 2 on the 21st july, 2015 on the 26th of may i was diagnosed with stage 4 neuroblastoma which is an aggressive childhood cancer, prior to going to the hospital i was a healthy child doing normal things, without any symptoms but all of a sudden i got a very swollen tummy which i then went to the doctors to be referred to accident and emergency at the royal victory infirmary Newcastle upon tyne, which i had to have blood tests and ended up with 2 bandages on my hands, i later had to have a scan which confirmed i had a mass in my abdomen, but at this stage my mammy and daddy didn't know what this meant, the doctors asked us to stay at hospital so i stayed there with my mammy and daddy, the next morning my mammy and daddy had getting news off the doctors that my bloods had came back abnormal and i needed to be referred to specialist, later that morning i had to have an ultrasound where there was jelly put on my tummy, which i did not like.. and was very uncomfortable for me with my very large tummy, later that day a doctor came round and give my mammy and daddy the news they were dreading and told them i had a solid tumour in my abdomen which was cancerous and very large. and that i would have to start chemotherapy immediately , i was transfered over to ward 4 at the great north children's hospital. where i stayed for 5 weeks prior to admission, the next day i had to go down to theatre and be put under general anaesthetic and i have had to have hickman lines put in for my chemotherapy and have sum of my bone marrow taken away to be checked and a biopsy done to check my tumour, i then came round from theatre where my mammy and daddy waited for me in recovery, the next day which was a friday i was put on chemotherapy which is a trial called rapid cojec, which i have every 10 days, my bone marrow came back which said i had cancer all over my body in my bone marrow and my tumour has a gene called mcyn which makes my tumour grow very fast, and my tumour has lots of blood vessels wrapped around it and my main blood vessel runs through the middle of it, so it could be more harder to operate i am now on my 6th lot of chemotherapy on saturday the 18th of july 2015, so i am now over the halfway mark but the consultants said that i will probably need more chemotherapy before they can take me to theatre to take my tumour out if it is possible.. as they want the rest of my body clear of cancer, i will also need high dose chemotherapy after.. then will need radiotherapy for 6 weeks everyday.


I travel to the hospital 3 times a week for ambisone which is an anti fungal and i have regular blood tests to check my count and sumtimes i need blood transfusions and platelts as they get very low off chemotherapy, i also have a injection after every chemotherapy for 5 or 6 days, im just hoping to get better very soon so i can get back to doing normal things and having fun with my mammy and daddy..and all my family nd friends. the only thing is is i have a very rare form of cancer called high risk neuroblastoma and even if i get cleared i can relapse before i am 5 and i have an 80% chance of relapse and 50/50 survival rate and there is no treatment to be funded in the uk and you have to go to america for treatment and it costs around £500.000,-550.000 please if you can help me it would be really appreciated as i would love just to be able to get better and have lots of years of fun with my family thankyou for looking at my page lots of love frankie xx