Caya's SDR Marathon
Donation protected
Hi,
Here we go! This so doesn't come easily to me...
Lovely Caya is 8 years old and has spastic diplegia Cerebral Palsy. Cerebral Palsy is a condition that affects muscle control and movement. The spasticity means muscle tone is tight and stiff causing a decrease in range of movement and also causes pain.
Caya currently uses a walker or a wheelchair to get around but as she gets older and she grows her muscles become tighter making walking more and more difficult.
Her legs are already so tight that even when she is wearing her AFOs she is unable to fully put her heel down. This in turn affects her balance and she often falls.
At 8 she is becoming more and more aware of finding things harder than her peers and her younger sister. And finding this more and more unfair.
Caya was on the list to be assessed for SDR (Selective Dorsal Rhizotomy) on the NHS. And then NHS funding was stopped.
SDR is a surgical procedure that involves dividing and cutting some of the nerves in the spinal cord that contribute to spasticity in the lower limbs. But it doesn't come cheap...
We would need to raise approximately £40,000 (£31,000 for the operation and then £10,000 for the ongoing, intensive physiotherapy that Caya would need afterwards).
We aim to fund or get a loan for as much as we can ourselves but need help. The optimum age for this surgery is between 4 and 7 so every month is a month away from this.
When Caya was first diagnosed we asked her consultant what the condition meant, we were bluntly told 'Put it this way, she'll never run a marathon.' We want to prove her wrong.
Any help at all would be hugely appreciated.
Thank you.
Here we go! This so doesn't come easily to me...
Lovely Caya is 8 years old and has spastic diplegia Cerebral Palsy. Cerebral Palsy is a condition that affects muscle control and movement. The spasticity means muscle tone is tight and stiff causing a decrease in range of movement and also causes pain.
Caya currently uses a walker or a wheelchair to get around but as she gets older and she grows her muscles become tighter making walking more and more difficult.
Her legs are already so tight that even when she is wearing her AFOs she is unable to fully put her heel down. This in turn affects her balance and she often falls.
At 8 she is becoming more and more aware of finding things harder than her peers and her younger sister. And finding this more and more unfair.
Caya was on the list to be assessed for SDR (Selective Dorsal Rhizotomy) on the NHS. And then NHS funding was stopped.
SDR is a surgical procedure that involves dividing and cutting some of the nerves in the spinal cord that contribute to spasticity in the lower limbs. But it doesn't come cheap...
We would need to raise approximately £40,000 (£31,000 for the operation and then £10,000 for the ongoing, intensive physiotherapy that Caya would need afterwards).
We aim to fund or get a loan for as much as we can ourselves but need help. The optimum age for this surgery is between 4 and 7 so every month is a month away from this.
When Caya was first diagnosed we asked her consultant what the condition meant, we were bluntly told 'Put it this way, she'll never run a marathon.' We want to prove her wrong.
Any help at all would be hugely appreciated.
Thank you.
Organizer
Luel Ma
Organizer