Nori Strong
Donation protected
please help it to be a little easier to bring baby Nori home.... finally.
Eleanor "Nori" Austin was born with a rare genetic condition called Trisomy 18. At 37 weeks she came into the world weighing 3 lbs. 8 oz. When she was born her parents were told to take her home and enjoy their time, that she would only make it a few weeks. They knew this was not how her story would end and were told they would need to go to Lebonheur Children's hospital. She spent the next 9 months in the Lebonheur NICU where she has overcome many obstacles. She has had 4 surgeries including open heart surgery and most recently liver surgery for hepatoblastoma. She recently spent 2 months at St. Jude for two rounds of chemo and is now cancer free! This little girl has taken on everything thrown at her, she is so strong! She is now back at LeBonheur Children's hospital preparing to finally go home! She is so very loved by her mom and dad and 4 siblings! They can not wait to finally have her home!
As far as Nori has come, her journey and expenses are far from over. She will come home with expensive medicines, a home vent, and other medical equipment. Her parents face challenges learning to adapt to her needs on their own. Making it this far, this beautiful little girl has touched so many lives already and has changed the way doctors look at this disease. #Noristrong
Eleanor "Nori" Austin was born with a rare genetic condition called Trisomy 18. At 37 weeks she came into the world weighing 3 lbs. 8 oz. When she was born her parents were told to take her home and enjoy their time, that she would only make it a few weeks. They knew this was not how her story would end and were told they would need to go to Lebonheur Children's hospital. She spent the next 9 months in the Lebonheur NICU where she has overcome many obstacles. She has had 4 surgeries including open heart surgery and most recently liver surgery for hepatoblastoma. She recently spent 2 months at St. Jude for two rounds of chemo and is now cancer free! This little girl has taken on everything thrown at her, she is so strong! She is now back at LeBonheur Children's hospital preparing to finally go home! She is so very loved by her mom and dad and 4 siblings! They can not wait to finally have her home!
As far as Nori has come, her journey and expenses are far from over. She will come home with expensive medicines, a home vent, and other medical equipment. Her parents face challenges learning to adapt to her needs on their own. Making it this far, this beautiful little girl has touched so many lives already and has changed the way doctors look at this disease. #Noristrong
Organizer
Mindy N Sam Walker
Organizer
Germantown, TN