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tori's medical fund (rare syndrome)

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Tori is a 17yr old girl with a rare syndrome called proteus syndrome there is only about 200 people in the world with this syndrome. Proteus syndrome is a overgrowth disorder. Tori is now on airways alert because the bones in tori's neck are 4 times the size of what they should be and are closing tori's airways her airways are now the size of baby's airways

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    Organizer

    Wendy Punch Savill
    Organizer
    Winfield, QLD

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