Help us get to a PH Specialist @ CHOP!
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Please help us reach our goal, and help me, get Aubrey to CHOP! MY children suffer from PH (Pulmonary Hypertension), which is a life threatening illness, in which there is NO cure. Recently Aubrey has been experiencing more and more symptoms, which are very concerning because it can mean progression. Each year we lose too many children to this stupid disease, and most of the time it just sneaks up on them. This is why with all these symptoms progressing I am worried sick. We took her to our local specialist in Atlanta, and in my honest opinion, they do not fully understand the disease, and have pushed Aubrey aside. Her test result are very concerning to me, so I emailed many of the top specialist in the world, and we received a very in dept email back from Dr. Hanna at Children's Hospital of Philadelphia. He is very concerned and said Aubrey is sicker than the Doctors in Atlanta say she is. He believes her Pulmonary Vascular bed is only working 35 - 75 %, and this should be 100%. There are many more numbers that are alarming, but most would not understand these numbers, so I will not bore you with these. He wants to see her ASAP, and she will be in the hospital in PA for at least a week for testing and to determine treatment. We are a struggling family as it is, with 3 children with this disease, because there are many missed days of work and many drives into the city to go to the doctor. We are desperate to get her there and get her the help she deserves, but we just have to find the funds to get her there. I know money is tight for everyone, but my daughters life in danger if I don't get her too see a topped ranked specialist soon. I want to thank you in advance for any donation you can give, any amount will help. Also your prayers are greatly appreciated as well.
Organizer
Tiffany McDaniel Hutchison
Organizer
Stockbridge, GA