MND Over Matter- Phil's Fight

I watch in awe of my amazing husband and his fight against MND (motor neurone disease). I am yet to meet a stronger and more optimistic person. Every day since diagnosis, he has made it his mission to fight. To live. To not be afraid. I often dare, for a moment, to put myself in his shoes. To live in a body that is shutting down. To have legs that don't support you, arms that can't lift your children or hug your family. Chest muscles that lack the strength to support you, a voice that may fade and disppear completely. I wouldn't wish this condition on my worst enemy and it breaks my heart every day watching the man l love, the father of my children, my kind, positive, caring hardworking husband struggling everyday- knowing that as yet, there is no cure. Knowing that his condition is terminal. The thought terrifies me. How do I explain to our beautiful girls that they won't have their daddy forever? Every day is a blessing and we try to find the good in every day and live a brave life. But those days are getting tougher. I still work full time as a teacher ( a job I love but that takes me away from being able to fulfil his caring needs). Phil's struggle to work is near impossible and the commute alone leaves him exhausted and struggling. We rely on our children more and more which we hate and each month it feels like more and more adaptations are necessary to ensure Phil has a quality of life. We smile and cry a lot and try to live in the moment as looking forward is too scary. Yet somehow he still manages to smile- despite the tubes and tests and machines and prognosis and deterioration and effort and exhaustion. For every knock he gets right back up and I know he will be fighting until a cure is found. My hero. I can't take his pain and fear away but I can do everything I can to try and make life easier and less of a burden. To have a few more reasons to smile and a few more memories for our girls. I want to raise enough money for adaptations, a holiday to Disney and to pay off our mortgage to allow Phil to stop work and concentrate on living and not just surviving. My target is £100,000 Thank you x Rachel