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Desmond Macho's Brain Tumor Treatment & Aftercare

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I've created this GoFundMe in an effort to raise funds to support my son's operation and subsequent indefinite treatment related to brain cancer. 
On June 25th, 2019, in an effort to get him help for what we all thought  was severe emotional & mental issues, a large, egg-sized tumor was discovered in his left, frontal lobe.  
Within 15 hours of this discovery, his mother,  his identical twin brother Damion and myself sat in disbelief as we watched terms like "..brain cancer...", "...remission is not applicable...", "...buying time..." and single-digit life expectancies confidently drift from the neurosurgeon's mouth.
We won't know with absolute certainty the specific tumor he has until it is removed on the tentative date of July 16th, 2019.  His doctor's current best assessment based upon the physical characteristics and his extensive experience is that it is low-grade glioma.  100% of low-grade glioma will eventually become high-grade glioma.  As of right now and there is a lot that is unknown and there is thankfully reason to be realistically hopeful that Desmond can stay with us well into his 30's.  
Whatever the outcome, there is no reverse. There is no backwards. The damage that tumor has caused already is permanent.  The operation and any subsequent chemotherapy and/or radiation will be to slow progression. Not stop. 
To be frank, I never thought I would be creating a GoFundMe, and I certainly didn't expect it to be for my child.  I found myself staring at that blank space where i enter the "goal".   Asking for money in this way is strange and uncomfortable.  I struggle with asking for help to carry in groceries, nonetheless requesting money from literally everyone i know and people i don't.  After accepting the fact that Desmond's needs and medical expenses will continue for the remainder of his life, i settled on the lofty goal $20,000.  It's honestly an arbitrary number. It's based on nothing other than knowing $2,000 is a drop in the bucket and $200,000  just seems silly to ask for. I don't know. 
 What i do know is that Desmond has been a sweet, kind human being from the day his tiny, 2½lb body followed his identical twin brother Damion into the world, 3 months early.  Together, they fought to live in the Altru NICU.  Several times his mother, Jessica, and I were told to rush to the hospital to say good bye. They were dying. It was certain, and soon. We would arrive, only to have these tiny little guys, both now under 2lbs each, buck the odds and stabilize.  They then spent their early years toughing out the process of myself and their mother stumble and fumble through learning how to be parents, well before either of us were prepared to be.  They endured us.  They grew with us. They forgave us. They've always loved us.  
Always smiling, always laughing, gentle, polite, patient, inquisitive and creative, Desmond is a much loved big brother to his seven younger siblings.  He never tires of that role and it's truly his natural habitat.  
     About 5 years ago, Desmond suddenly taught himself how to play keyboard.  He purchased a synth and started writing music.  It was good from the beginning, but with every subsequent song he would send me it would get noticeably better.   He loved making music and poured his heart into it.  Despite me being a musician, he never asked me for any help and self-taught himself completely.  By his second album, i was no longer just patting him on the back, but asking him how on earth he figured out certain chords and transitions despite not even knowing the names of the chords.  When you combine this with his natural artistic hand and photographic eye , he is an incredibly naturally talented young man.  
    I didn't really know where to start this and now I don't know where to stop.  If you know Desmond, you didn't really need to read any of this because you know how great of a person he is.  If you don't know Desmond, I guarantee that anyone you find that does will back up everything I've said here.
  Even in the best-case situation, Desmond has a hard road ahead.  We all hope it's the  longest road possible, but it's going to a tough one no matter what, and he needs some help.   Desmond has already had to confront the reality that he can no longer drive.  A tough thing at any age, unthinkable at 25. 
He is taking it all in stride, with his usual humor.  
He worries more about the people worrying for him than he worries about himself.  

Anything you can contribute helps.  
Every penny of what you contribute will go to offset Desmond's medical, rehabilitation, after care, travelling and living expenses.  

Desmond is a good person.
He contributes more to our world than even he understands by way of his affable demeanor and nurturing nature. 
He is worth investing in. 
Thank you so much for taking the time to read this and I humbly  thank you for any contribution you can make.  -Sincerely, Eric Macho

(You can get updates on Desmond's progress here:
https://www.caringbridge.org/visit/desmondmacho )
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Donations 

  • Matt May
    • $100 
    • 4 yrs
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Organizer

Eric Macho
Organizer
Grand Forks, ND

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