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Help Dalelyla attend Purpose Tour

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My name is Mo, I have a God Daughter who was born with Spina Bifida. Dalelyla is just three years and has been through 17 brain and spinal surgeries to date. Having Spina Bifida has led to many secondary defects including Chairi II Malformation, Hydrocephalus, and Craniosyntosis. These are some complicated words that are actually pretty fitting for these rare, complicated defects... Her many specialists often say "She's writing her own textbook.." Originally from Tennessee, they regularly traveled out of state to find specialists that would take on her rare case, because Tennessee just doesn't have the funding or equipment available to fit needs like Dalelyla's. Most doctors haven't seen anything remotely close to her and refuse to touch her in fear of not knowing how to handle her if something goes wrong. 

Dalelyla's ability to connect with music is so inspirstional. I'm from California and found her story through music, a twitter page for Justin Bieber to be exact. Being a fan myself and with a love to travel, I was attending Purpose Tour Orlando and saw that Dalelyla and her family had to relocate to there in a matter of weeks due to her taking a turn for the worse. A team at Arnold Palmer Childrens Hospital agreed to take on her case on one condition, they have to be living down there.. So that's just what her mom did, they packed a bag and was gone.
Her numerous conditions have came with complications including: mobility issues (no feeling from T11 down, so mid abdomen and lower), learning disabilities, an enlarged head, blurred vision (with eventual blindness), seizures, & breathing/swallowing complications (a feeding tube is required) just to name a few.. Rare cases like hers need more awareness, research funding, and clinical trials... My goal is just to get her word out. 

Now Dalelyla loves all music, but when she is crying in the hospital room awaiting her next surgery, her mom will put on a Justin Bieber music video and she will instantly stop crying and just focus on the screen. Her ability to connect with Justin's music is mind blowing. Having the Purpose Album come out could not have been more fitting. I truly believe there was a purpose as to why I met this inspirational little girl. She captures the hearts of anyone that has the pleasure of meeting her.


*This campaign is to help Dalelyla attend Purpose StadiumTour (A ticket to the show and flight to get there as Justin isn't coming to Florida this time around)*
Funds need to be raised as soon as we can so we can get the tickets while still available... Any help is GRATELY appreciated, even if it's just a few dollars to help this little girls dream come true of seeing her idol and for me to see the smile on her face as she get's to have an experience of a lifetime.
*Disclaimer* If for some reason she absolutely can't make it due to a medical emergency etc. the funds won't be wasted and will still go directly to her either way.

Organizer

Dalelyla Maples
Organizer
Lake Isabella, CA

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