Love For Lorelei Christine Lovelady

Lorelei Christine Lovelady was diagnosed with an extremely rare genetic disease called Primary Hyperoxaluria Type 1 on February 28, 2017. We received the genetic test results on March 14, 2017 that confirmed the PH1 diagnosis.    Lorelei is currently at Lurie's Childrens Hospital in Chicago under the care of Dr. Craig Langman & his team. Our next step is to get our girl a new liver & then once she hits the 10 kilo weight we can get her on the list for a new kidney as well. The future is very much unknown at this time. One thing is inevitable though and that is medical, travel, & living expenses. Megan will be living in Chicago with Lorelei for an unknown amount of time and John will be traveling up on the weekends, with Silas as much as possible, in order to give us all some time together. The future is unknown, but today is a gift. So we will just keep taking it one day at a time. We have an extremely long road ahead of us, but we are ready to attack it head on with God in the driver's seat. Any donation will be extremely appreaciated but is not at all necessary. This page was created as a way to keep our friends and family without Facebook updated. Please just lift little Lorelei up in prayer every chance you can! We believe in the power of prayer! "Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus. - Philippians 4:6-7