UR YellowJackets' Concert for a Cure
Donation protected
Donations Go To:
FRIEDREICHS ATAXIA
RESEARCH ALLIANCE
SPRINGFIELD, VA
This past November, Rochester local Sara Ferrarone died at 26 following a lifelong struggle with Friedreich's Ataxia, to the great loss of her fiancé, her friends, and her family. Friedreich's Ataxia is a debilitating neuromuscular disease that entails gradual loss of all mobility, progressively worsening speech dysfunction, hearing loss, and vision loss. Although Friedreich's ataxia is rare, it is the most common form of inherited ataxia; 1 in 100 people carry the FA gene. It shares similar mechanisms with other diseases, such as Alzheimer's disease and Parkinson's. Sara's sister Laura has FA as well, as does the sister of one of our own Rochester YellowJackets. As they meet with enormous challenges every day, they are fighting for a cure. We are joining them in that fight. Following Sara's death, the best thing that we can do now is to prevent one more. All proceeds go directly to the Friedrich's Ataxia Research Alliance, a non-profit dedicated to vital research. Every dollar counts. Your contributions are appreciated so very much. Thank you. If you can't contribute, pass this along to someone who can. Share it with your friends, families, and colleagues, and help us exceed our fundraising goal!You can help in other ways too! Visit www.jackets.org to order tickets to our concert or download a song, and check out www.cureFA.org to learn more.Photo, from left: Laura and Sara Ferrarone
TAX ID: 522122720
UPDATE:Concert for a Cure is going to be LiveStreamed Friday night 8pm EST, here! (http://www.ustream.tv/channel/sleddogstudios). We hope you all enjoy the show, whether you watch it from a seat in Strong Auditorium at U of R, or from your home! Thank you everyone for the amazing support-- we're getting closer and closer to our goal (and beyond!), and let's keep the momentum going!!!
This past November, Rochester local Sara Ferrarone died at 26 following a lifelong struggle with Friedreich's Ataxia, to the great loss of her fiancé, her friends, and her family. Friedreich's Ataxia is a debilitating neuromuscular disease that entails gradual loss of all mobility, progressively worsening speech dysfunction, hearing loss, and vision loss. Although Friedreich's ataxia is rare, it is the most common form of inherited ataxia; 1 in 100 people carry the FA gene. It shares similar mechanisms with other diseases, such as Alzheimer's disease and Parkinson's. Sara's sister Laura has FA as well, as does the sister of one of our own Rochester YellowJackets. As they meet with enormous challenges every day, they are fighting for a cure. We are joining them in that fight. Following Sara's death, the best thing that we can do now is to prevent one more. All proceeds go directly to the Friedrich's Ataxia Research Alliance, a non-profit dedicated to vital research. Every dollar counts. Your contributions are appreciated so very much. Thank you. If you can't contribute, pass this along to someone who can. Share it with your friends, families, and colleagues, and help us exceed our fundraising goal!You can help in other ways too! Visit www.jackets.org to order tickets to our concert or download a song, and check out www.cureFA.org to learn more.Photo, from left: Laura and Sara Ferrarone
Organizer
Galen Dole
Organizer
Rochester, NY