Help Aedan Pio Fight Chordoma

Hi, I'm Jan and on behalf of Aedan Pio's loved ones and supporters, I have started this gofund me page to help this little boy get his cure. Aedan Pio is four years old and is currently fighting against Chordoma, a cancer so rare that only one in a million gets it. 

Aedan Pio's mom, Gem, is still waiting to hear back about the total cost of the treatment but we'd love to get a headstart on raising funds for his cure! 

***Update: cost for PBT (Proton Beam Therapy) would be around $250,000 not including any surgery he may need prior to getting PBT - If 25,000 people would donate $10 each - the amount is reachable! Please spread the word and help this kid get his cure! Maybe he will be the next Neil Armstrong! ***

Here's a note from Aedan Pio's Fight with the Uncommon Facebook page :


I am Aedan Pio Pascual Malvar. I love the solar system, lego and subway surf. I love reading about the planets and I love making clay models of our Milky Way galaxy. I told my mom I want to be an astronaut at NASA. I learned to read when I was two and I learned to write when I was three. I am now four years old and I have cancer.

I have Chordoma.



They said it is a rare type of bone cancer that occurs in the bones of the skull and spine. I was told I was one in a million. I was told I was the youngest patient they have.

They told me the average survival is 7-9 years if treated. They told me there is no approved drugs for it and that it is difficult to treat and require highly specialized care. I was told I was rare. I was told I was uncommon.

I had my first craniotomy this July 8, 2015 at Philippine General Hospital. My doctor - Doc Gap was able to removed 40% of my grapes (tumor). I call it grapes because it looks like grapes inside my head.


He said the remainder is now shaped like a butterfly around my brain stem and he couldn't do it. The remaining 60% will be done by Jesus. I always tell mommy it is Jesus who will remove the rest.



Although my cancer is uncommon I feel okay. Although my speech is now slurred and although I walk with a limp now - I know I will be okay.



My doctors told me there is a treatment - even if they cannot remove the remaining grapes - I was told proton beam therapy can.

But there is no proton beam therapy here in the Philippines and it would cost my mommy a lot.

I hope there would be people out there who can help me get my cure.

This is my story. This is the story of other kids in my country who may have Chordoma like me.

I hope I can be given a chance to have my grapes removed.



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Thank you in advance for donating and/or telling your friends about this cause. We'd love to get Aedan Pio access to his cure. We'd love to see him grow up, work at NASA and live a full life with his mom and his loved ones.