Ainsley Grace's Warrior Fund
**UPDATE - Ainsley is home!!**
My cousin Brady, and his wonderful wife Ashley, welcomed their first child into the world on 1/24/17 in Louisville, Kentucky. Ainsley Grace Gray was born 2.5 weeks early and has been in the NICU for the past 4 weeks. She has been diagnosed with a very rare genetic disorder called Osteogenesis Imperfecta type 3. Osteogenesis Imperfecta, a type of brittle bone disease, causes Ainsley’s bones to be very fragile and to break easily. She was born with multiple fractures in all extremities, rib fractures, and also fractures that were in various stages of the healing process. There is only 1 other documented case of her specific genetic mutation. Not to mention she has another, completely separate from the OI, genetic condition called Septo-Optic Dysplasia.
OI Type 3 is one of the more severe types of OI and they will be seeking focused care for many years to come. While her doctors in Louisville are doing all that they can to treat her, OI is such a rare condition, her entire medical team have only collectively treated 4 OI type 3 babies in their careers thus far. It is for this very reason that they feel it is in her best care to travel out of state to seek the best focused care for OI infants. Right now we are unaware of the overall cost of her care but we do know that she will be getting a treatment for OI every 8 weeks and they will be traveling to an OI clinic somewhere outside of Kentucky. Brady and Ashley are currently in the process of getting insurance for Ainsley. We are completely in the dark as to the specific needs once they get home. We do know that there are very few clinics in the country experienced in treating OI infants this severe. This treatment at one of the specialty clinics may or may not be covered by insurance. Any and all funds given will go directly to her medical bills, travel, and expenses directly connected to her long-term care.
I will post periodic updates on this page but if you would like daily updates, visit and "like" https://www.facebook.com/prayersforainsleygrace/